Tag Archives: amyotrophic lateral sclerosis (ALS)

Let’s Talk About AAC: Better Speech and Hearing Month Meets ALS Awareness Month

Posted on May 11, 2022 by naricspotlight

Better Speech and Hearing Month and ALS Awareness Month combine to help people with severe neurodegenerative conditions communicate with the world around them. Continue reading →

Posted in Research Study | Tagged AAC, ALS, ALS Awareness Month, amyotrophic lateral sclerosis (ALS), augmentative and alternative communication (AAC), Better Speech and Hearing Month, NIDILRR funded projects, RERC, speech therapy | Leave a comment

ADELA: Providing Information and Support to People with ALS, Their Families, and Service Providers

Posted on January 7, 2021 by mpgarcia

The Spanish Association of Amyotrophic Lateral Sclerosis (ADELA, according to its Spanish acronym) (in Spanish) is a non-profit organization that was founded in 1990 and which extends its activities to Spain and all of its territories. The principal mission of … Continue reading →

Posted in Organization, Spanish | Tagged ADELA, ALS, amyotrophic lateral sclerosis (ALS), Disabilities, disability, family, motor-neuron diseases, quality of life, service providers, Spanish, support, technical assistance | Leave a comment

FUNDELA: Increasing Research and Knowledge on Amyotrophic Lateral Sclerosis

Posted on September 3, 2020 by mpgarcia

The Spanish Foundation for the Promotion of Research on Amyotrophic Lateral Sclerosis (FUNDELA, Spanish acronym) was established in December 2002, with the specific objective of promoting research on amyotrophic lateral sclerosis (ALS) in Spain. FUNDELA also disseminates information on advances … Continue reading →

Posted in Organization | Tagged ALS, amyotrophic lateral sclerosis (ALS), FUNDELA, knowledge, Lou Gherig's Disease, research | Leave a comment

Gila – Comprehensive Support for People with Amyotrophic Lateral Sclerosis

Posted on March 12, 2020 by mpgarcia

Apoyo Integral Gila A.C. (Gila) (in Spanish) is a non-profit association in Mexico that provides support and guidance to people with amyotrophic lateral sclerosis (ALS) and their families and friends, so that the person with ALS may have a better … Continue reading →

Posted in Organization | Tagged ALS, amyotrophic lateral sclerosis (ALS), assistive technology solutions, community, comprehensive support, education, Gila, palliative care | Leave a comment

Keep Communicating – Better Speech and Hearing Month and ALS Awareness Month

Posted on May 28, 2019 by naricspotlight

For ALS Awareness Month and Better Speech and Hearing Month, we look at research and resources to help people with ALS keep communicating! Continue reading →

Posted in Right Resources Right Now | Tagged AAC, ALS, amyotrophic lateral sclerosis (ALS), augmentative and alternative communication (AAC), Better Speech and Hearing Month, communication, Lou Gehrig's disease, speech generating devices, speech therapy | Leave a comment

Answered Questions: Monthly News for the Disability Community for May 2019

Posted on May 23, 2019 by mpgarcia

Answered Questions is a monthly resource for the Spanish language Disability Community that fills an information need. This month’s question is: My dad was recently diagnosed with Amyotrophic Lateral Sclerosis (ALS). I would like more information and resources to help … Continue reading →

Posted in Answer Queue, Respuestas a las Preguntas | Tagged #ALSAwarenessMonth, AAC, ALS, ALS Awareness Month, amyotrophic lateral sclerosis (ALS), Answered Questions, assistive technology, augmentative and alternative communication, brain computer interface, community involvement, Disabilities, independence, mobility devices, NIDILRR, NIDILRR Projects, NIDILRR Research, people with disabilities, physical therapy, quality of life, social media, socioeconomic impact, stem cell therapy | Leave a comment

Disability News Weekly Roundup – Monday, August 17 – Friday, August 21

Posted on August 21, 2015 by bchaiken2014

Aquí puede leer este artículo en español. Human Interest: Found near death in Grant Park, a loner pit bull has a new best friend (Chicago Tribune) Merit, a young pit bull, was found near death in Chicago’s Grant Park. After … Continue reading →

Posted in Weekly News Roundup | Tagged ACAT, accessible hotel accommodation, accessible travel, amyotrophic lateral sclerosis (ALS), Anoto Live Pen, Assistive Context Aware Toolkit, colorblindness, dementia diagnostic, digital community, down syndrome, Dr. Stephen Hawking, EnChroma eyeglass lenses, JFK Johnson Rehabilitation Institute, leg amputation, pit bull, robotic prosthesis, therapy dogs, Tracy Morgan | Leave a comment

Disability News Weekly Roundup – Monday, October 13 – Friday, October 17

Posted on October 17, 2014 by bchaiken2014

Human Interest: ‘Argo’ hero Tony Mendez battling Parkinson’s (The Washington Post) Tony Mendez, the real-life CIA agent portrayed in the movie “Argo,” is using his fame to raise awareness of Parkinson’s disease, a disability for which he is in treatment. … Continue reading →

Posted in Weekly News Roundup | Tagged amyotrophic lateral sclerosis (ALS), cochlear implant, deep brain stimulation, dementia, disability employment, egonomic walking cane, focused ultrasound, Focused Ultrasound Foundation, hearing impairment, neurodegenerative disease, OtoSense sound identifying mobile app, Parkinson's Disease, pressure sensor for prosthetic leg socket, prosthetic socket, shape-changing, sulforaphane and autism, Tony Mendez | Leave a comment

Disability News Weekly Roundup – Monday, August 18 – Friday, August 22

Posted on August 22, 2014 by bchaiken2014

Funding: “Ice Bucket Challenge” has raised millions for ALS Association (The New York Times) The “Ice Bucket Challenge” has lit social media on fire, raising both money and awareness for amyotrophic lateral sclerosis (ALS). About 30,000 Americans have the disease, … Continue reading →

Posted in Weekly News Roundup | Tagged ALS, ALS Association, amyotrophic lateral sclerosis (ALS), ASD, autism behavior therapy, autism spectrum disorder, children with disabilities, Evermind, home safety monitor, household appliance monitor, independent living, legislation, medicare, Medicare fraud, National Health Interview Survey, nursing homes, Put a Registered Nurse in the Nursing Home Act, registered nurse, schizophrenia, wheelchairs | Leave a comment