Tag Archives: ALS

Let’s Talk About AAC: Better Speech and Hearing Month Meets ALS Awareness Month

Posted on May 11, 2022 by naricspotlight

Better Speech and Hearing Month and ALS Awareness Month combine to help people with severe neurodegenerative conditions communicate with the world around them. Continue reading →

Posted in Research Study | Tagged AAC, ALS, ALS Awareness Month, amyotrophic lateral sclerosis (ALS), augmentative and alternative communication (AAC), Better Speech and Hearing Month, NIDILRR funded projects, RERC, speech therapy | Leave a comment

ADELA: Providing Information and Support to People with ALS, Their Families, and Service Providers

Posted on January 7, 2021 by mpgarcia

The Spanish Association of Amyotrophic Lateral Sclerosis (ADELA, according to its Spanish acronym) (in Spanish) is a non-profit organization that was founded in 1990 and which extends its activities to Spain and all of its territories. The principal mission of … Continue reading →

Posted in Organization, Spanish | Tagged ADELA, ALS, amyotrophic lateral sclerosis (ALS), Disabilities, disability, family, motor-neuron diseases, quality of life, service providers, Spanish, support, technical assistance | Leave a comment

FUNDELA: Increasing Research and Knowledge on Amyotrophic Lateral Sclerosis

Posted on September 3, 2020 by mpgarcia

The Spanish Foundation for the Promotion of Research on Amyotrophic Lateral Sclerosis (FUNDELA, Spanish acronym) was established in December 2002, with the specific objective of promoting research on amyotrophic lateral sclerosis (ALS) in Spain. FUNDELA also disseminates information on advances … Continue reading →

Posted in Organization | Tagged ALS, amyotrophic lateral sclerosis (ALS), FUNDELA, knowledge, Lou Gherig's Disease, research | Leave a comment

Gila – Comprehensive Support for People with Amyotrophic Lateral Sclerosis

Posted on March 12, 2020 by mpgarcia

Apoyo Integral Gila A.C. (Gila) (in Spanish) is a non-profit association in Mexico that provides support and guidance to people with amyotrophic lateral sclerosis (ALS) and their families and friends, so that the person with ALS may have a better … Continue reading →

Posted in Organization | Tagged ALS, amyotrophic lateral sclerosis (ALS), assistive technology solutions, community, comprehensive support, education, Gila, palliative care | Leave a comment

Keep Communicating – Better Speech and Hearing Month and ALS Awareness Month

Posted on May 28, 2019 by naricspotlight

For ALS Awareness Month and Better Speech and Hearing Month, we look at research and resources to help people with ALS keep communicating! Continue reading →

Posted in Right Resources Right Now | Tagged AAC, ALS, amyotrophic lateral sclerosis (ALS), augmentative and alternative communication (AAC), Better Speech and Hearing Month, communication, Lou Gehrig's disease, speech generating devices, speech therapy | Leave a comment

Answered Questions: Monthly News for the Disability Community for May 2019

Posted on May 23, 2019 by mpgarcia

Answered Questions is a monthly resource for the Spanish language Disability Community that fills an information need. This month’s question is: My dad was recently diagnosed with Amyotrophic Lateral Sclerosis (ALS). I would like more information and resources to help … Continue reading →

Posted in Answer Queue, Respuestas a las Preguntas | Tagged #ALSAwarenessMonth, AAC, ALS, ALS Awareness Month, amyotrophic lateral sclerosis (ALS), Answered Questions, assistive technology, augmentative and alternative communication, brain computer interface, community involvement, Disabilities, independence, mobility devices, NIDILRR, NIDILRR Projects, NIDILRR Research, people with disabilities, physical therapy, quality of life, social media, socioeconomic impact, stem cell therapy | Leave a comment

Preguntas y Respuestas: Noticias Mensuales para la Comunidad de la Discapacidad – Junio 2017

Posted on June 22, 2017 by mpgarcia

Preguntas y Respuestas es un recurso mensual para la Comunidad de la Discapacidad de habla española que llena una necesidad de información. La pregunta de este mes es: ¿Qué investigación se está realizando sobre el empleo, la educación, y la … Continue reading →

Posted in Respuestas a las Preguntas | Tagged ABLEDATA, accesibilidad, ALS, AT discapacidades de audición, CAA, comunicación aumentativa y alternativa, comunidad de NIDILRR, discapacidades sensoriales, educacion, empleo, familias latinas, instrumentos de evaluación, Investigación de NIDILRR, Lengua de Signs Estadounidense, NIDILRR, perdida de audición, problemas de audición, RERC, salud mental, sordera, sordo-ciego, sordos, tecnologia, tele-práctica, utilidad | Leave a comment

Disability News Weekly Roundup – Monday, April 18 to Friday, April 22

Posted on April 22, 2016 by bchaiken2014

Aquí puede leer este artículo en español. Consumer Advocacy: Hearing aid prices under pressure from consumer electronics (The New York Times) The consumer electronics industry is encroaching on the hearing aid business, offering products that are far less expensive and … Continue reading →

Posted in Weekly News Roundup | Tagged adolescents with depression, Adult Changes in Thought study, ALS, Alzheimer's Disease, American Geriatrics Society, Born This Way TV show, CBT, chronic traumatic encephalopathy, cognitive behavioral therapy, CTE, deaf and hard of hearing, Deaf and Hard of Hearing Bar Association, down syndrome, hearing aids, personal sound amplification products, PSAPs, talk therapy, TBI, tools for testing 3D printed prostheses, traumatic brain injury | Leave a comment

Disability News Weekly Roundup – Monday, June 15 – Friday, June 19

Posted on June 19, 2015 by bchaiken2014

Aquí puede leer este artículo en español. Advocacy: Sports Illustrated honors walker with a cause (Disability Scoop) A week after 15-year-old Hunter Gandee walked to Ann Arbor while carrying his little brother with cerebral palsy, he walked onto the pages … Continue reading →

Posted in Weekly News Roundup | Tagged ALS, anxiety disorders, Canadian Hard of Hearing Association, cerebral palsy, cochlear implants, deaf and hard of hearing, depression, Gael Hannan, glaucoma, hearing loss, lip-reading hearing aid, macular degeneration, muscular dystrophy, post stroke rehabilitation, progressive hearing loss, prosthetic leg with sensors, retinitis pigmentosa, sign language, soft robotic rehabilitation glove, spinal cord injury, Sports Illustrated, TBI, traumatic brain injury, Va-ST Smart Specs. augmented-reality eyeglasses | Leave a comment

Disability News Weekly Roundup – Monday, August 25 – Friday, August 29

Posted on August 29, 2014 by bchaiken2014

Funding: How ALS could benefit from a flood of new funding (MIT Technology Review) As of August 22nd, the ALS Association had received $53.3 million since July 29th, compared to $2.2 million by that time last year, resulting from the … Continue reading →

Posted in Weekly News Roundup | Tagged ALS, ALS Association, ALS Ice Bucket Challenge, Alzheimer's Disease, amyloid, blood glucose levels, blood glucose monitor, chromosome 21, down syndrome, EEOC, Equal Employment Opportunity Commission, fall detection app, fall detection system, federal workers with disabilities, glaucoma, intermal optic pressure, Medicare nursing home rating system, nursing homes | Leave a comment