NIDILRR-Funded Consumer Products: Down Syndrome

According to the Centers for Disease Control and Prevention (CDC), Down syndrome is a condition in which a person has an extra chromosome 21 and “this extra copy changes how the baby’s body and brain develop”, which may cause mental and physical disabilities. There are three types of Down syndrome:

  • Trisomy 21, which is the most common type of Down syndrome – each cell in the body has 3 separate copies of chromosome 21 instead of the usual 2 copies.
  • Translocation Down syndrome, which accounts for about 3% of people with Down Syndrome – occurs when an extra part of whole extra chromosome 21 is present and is attached to a different chromosome rather than being a separate chromosome 21.
  • Mosaic Down syndrome, which affects about 2% of people with Down syndrome – Some of the cells of people with this type of Down syndrome have 3 copies of chromosome 21 while other cells have the typical two copies of chromosome 21.

Down syndrome affects each person differently. Some people with Down syndrome may have one or more major medical conditions such as hearing loss, obstructive sleep apnea, and heart defects present at birth, among others. Just like their peers without disabilities, people with Down syndrome may live well and independently into their 80s or longer in the communities of their choice. They may require support to participate in their communities, live independently, or take advantage of the same opportunities as their peers. These supports may include supported competitive employment, family support, accommodations, financial resources, and supported housing, among others.

NARIC’s information specialists are often asked for information and resources about these supports for people with Down syndrome. This month, we are highlighting evidence-based consumer products from the NIDILRR community for people with Down syndrome, their families, and service providers, which may include guides, calendars, factsheets, and more.

Below, you will find just a few examples of evidence-based consumer products produced by the NIDILRR community:

To learn more about these and other products from the NIDILRR community, contact NARIC’s information specialists.

About mpgarcia

I'm the Bilingual Information/Media Specialist at NARIC.
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