ADELA: Providing Information and Support to People with ALS, Their Families, and Service Providers

The Spanish Association of Amyotrophic Lateral Sclerosis (ADELA, according to its Spanish acronym) (in Spanish) is a non-profit organization that was founded in 1990 and which extends its activities to Spain and all of its territories. The principal mission of ADELA is to improve the quality of life of people affected by amyotrophic lateral sclerosis (ALS) or other motor-neuron diseases. ADELA offers services (in Spanish) such as physical therapy, speech therapy, talk therapy and other psychological modalities, caregiver support, and specific workshops. The Association provides information (in Spanish), guidance, advice on improving the quality of life or people with ALS or other motor-neuron diseases (in Spanish), and support to people with ALS and their families. ADELA also raises awareness in society about the effects of ALS and advocates for research on ALS and solutions for people living with ALS or other motor-neuron diseases. ADELA provides technical assistance (in Spanish), information on public assistance (in Spanish), and training to people with ALS (in Spanish), their families, and the service providers that work with them. The Association also organizes workshops, conferences, and all-day meetings on the latest research (in Spanish) related to ALS and other motor-neuron diseases. Finally, ADELA provides a quarterly magazine (in Spanish), videos (in Spanish), and other publications and guides (in Spanish).

About mpgarcia

I'm the Bilingual Information/Media Specialist at NARIC.
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