Answered Questions is a monthly resource for the Spanish language Disability Community that fills an information need. This month’s question is: My granddaughter has a burn injury. What research, information and resources are available to help her? This edition of Answered Questions includes items that discuss research on anabolic steroids and pediatric burn injury; the North Texas Burn Rehabilitation Model System; the role of youth coping mechanisms and caregiver psychopathology; returning to school after a major burn injury; cognitive and communication problems in burn injury; the initial management of burn injuries in children; and more. More about Answered Questions.
The pediatric model burn injury center, Effects of Anabolic Steroids and Blockade of Chronic Catecholamine-Mediated Stress on Psychosocial, Growth, Scar, and Physiologic Outcomes After Massive Burn Injury (in English) (90DPBU0003), conducts clinical research studies that aim to modulate the catabolic and hypermetabolic response to burn trauma in children and improve long-term outcomes in children with burn injuries. The center’s research focuses on children with severe burn injuries to assess the efficacy of propranolol, oxandrolone, or a combination of the two for one year after the burn injury to reduce the hypermetabolic and catabolic response. The center also looks at long-term outcomes.
The North Texas Burn Rehabilitation Model System (NTBRMS) (in English) (90DPBU0002) assesses long-term outcomes of people with burn injury enrolled in the Burn Model System National Database and uses the LIBRE Profile to determine the importance of post-traumatic growth, mental health, and burn-related clinical implications in children and adults with burn injuries as predictors of social participation outcomes. The NTBRMS collaborates with other NIDILRR-funded Burn Injury Model Systems (in English) and the Model System Knowledge Translation Center (MSKTC) (in English) to create consumer factsheets, videos, and other resources on a wide variety of topics related to burn injury (in English), including resources in Spanish. This center is currently collaborating with Shriner’s Hospital to develop the Preschool LIBRE, a computer-based questionnaire to assess the impact of burn injury on child health. This study will evaluate different health outcomes related to children’s physical and social recovery after a burn injury.
From the NARIC Collection:
The article, The role of youth coping strategies and caregiver psychopathology in predicting posttraumatic stress symptoms in pediatric burn survivors (in English), discusses a study that explored whether youth coping strategies and caregiver anxiety and depression predict youth posttraumatic stress symptoms (PTSS) following a burn injury. Researchers found that higher levels of caregiver anxiety and avoidance coping were associated with more PTSS and that caregiver anxiety and depression moderated the association between youth use of distraction coping and youth PTSS. The authors found that these results reinforce the importance of psychosocial functioning in pediatric burn survivors and their caregivers. The authors suggest that coping strategies may help reduce PTSS and against a harmful influence of caregiver psychopathology.
The factsheet, Going Back to School After a Major Burn Injury, explains how burn injury may affect students and how to support students with burn injuries returning to school. The factsheet also discusses different types of reasonable accommodations, structured vs. informal school re-entry programs, and what parents can do once their child returns to school after a burn injury. This factsheet was developed by researchers at the NIDILRR-funded Boston-Harvard Burn Injury Model System (in English) and the Northwest Regional Burn Model System (in English) in collaboration with the Model System Knowledge Translation Center (MSKTC) (in English). This factsheet is also available in English.
Research In Focus:
In a NIDILRR-funded study, researchers at the Boston-Harvard Burn Injury Model System Center (in English) looked at how common it is for people with burn injuries to develop cognitive problems that affect communication, how often these problems persist after inpatient rehabilitation, and who is at most risk for having cognitive problems that persist after rehabilitation. The article, For People with Severe Burn Injuries, Cognitive and Communication Problems May Be Common, discusses the finding that people with worse cognitive problems at admission were less likely to recover their full cognitive ability by the time of discharge and that older patients and those who were unmarried showed less cognitive recovery during their stay at the hospital than those who were younger and married. This article is also available in English.
The article, Pediatric burns: Initial management, discusses how burn injuries in children are a public health problem, with consequences that may include psychological, social, family, and work issues during the lifetime of the injured child. The authors discuss how the initial treatment approach may determine the appropriate treatment through a better understanding of burn injuries, physiopathology, and diagnostic accuracy. Through this article, the authors aim to assist clinicians and diagnosticians in minimizing the final consequences of a child’s burn injury and the child’s quick return to their normal life.
- MedlinePlus has a page dedicated to information on burn injuries, including information on treating and preventing burn injuries in children. This informative page includes links to information on diagnosis, treatments and therapies, risk factors, and living with a burn injury.
- KidsHealth (in English) provides information for parents on burn injuries. Topics discussed include types of burn injuries, how to prevent them, and what to do when a burn injury occurs. Also available in English.
- The Phoenix Society for Burn Survivors (in English) serves burn survivors, families and friends, burn care professionals, researchers and other interested people committed to empowering the burn community. They provide peer support for survivors and loved ones through the Phoenix Soar program (in English) by connecting them with others who have experienced similar trauma, provide virtual support (in English) for those who cannot meet in person, and provide resources and courses for survivors, their families, and professionals (in English). The Phoenix Society also provides support and resources for children and teens with burn injuries covering a wide range of topics, including bullying, COVID-19 and burn injuries, and resiliency.
About Answered Questions
Each month, we look through the searches on our blog and through the information requests made by our patrons who speak Spanish and pick a topic that fills the largest need. Each resource mentioned above is associated with this month’s information need. We search the various Spanish language news sources and feeds throughout the month to bring you these articles. With the exception of the NIDILRR Projects, From the NARIC Collection, and Further Investigation, all the linked articles and resources are in Spanish – any that are in English will be clearly marked.