Answered Questions is a monthly resource for the Spanish language Disability Community that fills an information need. This month’s question is: My cousin has a traumatic brain injury (TBI) and our family wants to help them live as independently as possible. What resources, information, and research are available on independent living for people with TBI? This edition of Answered Questions includes items that discuss NIDILRR-funded research on TBI and independent living; NIDILRR-funded resources for people living with TBI; returning to productivity after TBI; online socialization and community participation; brain rehabilitation; children and teens with TBI; and more. More about Answered Questions.
The Rocky Mountain Regional Brain Injury System (RMRBIS) (in English) provides a comprehensive multidisciplinary specialty system of TBI care in the Rocky Mountain region and its research focuses on the health and function and community living and participation of people with moderate to severe TBI. The Center’s research activities include a site-specific randomized controlled trial of a group intervention to improve Self-Advocacy for Independent Life (SAIL) after TBI, among others.
The Model Systems Knowledge Translation Center (MSKTC) (in English) works with the NIDILRR-funded TBI Model System Centers to develop resources for people living with TBI (in English), their families, friends, and other stakeholders. These evidence-based resources are available in a variety of formats and cover a variety of topics related to living with TBI, including sleep after TBI, seizures, balance and cognitive problems, and topics related to independent living. The MSKTC also provides factsheets in Spanish that discuss a variety of TBI-related topics, including those related to independent living after TBI.
From the NARIC Collection:
The article, Return to productivity projections for individuals with moderate to severe TBI following inpatient rehabilitation: A NIDILRR TBIMS and CDC interagency collaboration (in English), discusses a study that estimated the probability of return to productivity during a period of 5 years after a moderate to severe TBI. The results of this study highlight the importance of a person’s preinjury occupational status and level of education in their return to productive activity after experiencing a moderate-to-severe TBI. The study was a collaboration between the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and the Centers for Disease Control and Prevention (CDC).
The MSKTC has published an evidence-based factsheet, Social Skills After Traumatic Brain Injury, that explains what social skills are, describes how a TBI may affect them, and offers some tips to improve social skills after a TBI. This factsheet is also available in English.
Research In Focus:
The article, People with Traumatic Brain Injuries Who Socialize Online May Be More Involved In Their Communities Than Those Who Did Not, discusses a study by the TBI Model System Centers (in English) in Colorado, Pennsylvania, Massachusetts, Texas, Minnesota, and Alabama that looked at the associations between social participation and social Internet use among people with TBI. The researchers found that after accounting for demographics and injury variables, the social Internet users reported engaging in community activities outside the home more often and reported higher levels of engaging in relationships than the nonusers. The authors suggest that people with TBI may benefit from instruction on the use of smart phones and social media applications, perhaps during inpatient rehabilitation, and support to troubleshoot technical challenges so that they can become comfortable using these tools for social connection.
To learn more about NIDILRR-funded research on TBI and independent living, please visit our Research In Focus series.
The Mayo Clinic has published a factsheet on Brain Rehabilitation, which provides a general definition of brain rehabilitation and describes the reasons why a person with TBI may participate in this type of rehabilitation. It also describes what a participant may expect from this multidisciplinary approach and how brain rehabilitation helps people with TBI to return home and live as independently as possible. Brain rehabilitation is specific to the needs of each person and can include speech therapy, treatments for concussion, cognitive therapy, and support groups that assist people with TBI with the skills they need to live independently.
The article, Traumatic Brain Injury from the Center for Parent Information and Resources (in English), provides information on TBI with a focus on children and youth, including a definition of TBI and its signs and symptoms. It also includes tips for parents of children with TBI and educators. The article provides a case study, references, and resources and discusses how laws such as IDEA apply to children with TBI.
- The Texas Department of Health and Human Services has a webpage that discusses and defines TBI. The webpage includes links to educational videos, crucial information one needs to know when a TBI first occurs, preparing for emergencies, finding support and assistance, a program for Veterans with TBI, and more.
- The American Occupational Therapy Association (AOTA) (in English) has created a factsheet that discusses how occupational therapists (OTs) can help people with TBI live as independently as possible. The factsheet also discusses what symptoms people with TBI may experience, provides tips to help relieve the symptoms, and describes what OTs can do to help.
- The Brain Injury Alliance of New Jersey (BIANJ) (in English) has published a guide, Behavior After a Brain Injury: Challenges for Children and Adolescents, that discusses TBI in children and adolescents and how TBI affects them emotionally, physically, mentally, and cognitively. This guide for parents also discusses how a child’s or teen’s behavior may change after TBI and what parents can do to assist their children in monitoring their behavior at home, school, or in the community.
- Cognitopia Platform (in English) is a suite of web-based self-management tools for students with disabilities, including TBI. The platform includes libraries on routines that provide a starting point for support; a goal guide that helps students create goals, track their progress, and share their accomplishments with others; and a tool, MyLife, for IEP self-direction that builds students’ self-advocacy. This suite was developed under several NIDILRR grants.
- Independent Living and TBI
- Independent Living, TBI, and Rehabilitation
- Independent Living, TBI, and Education
- Independent Living and TBI
- Independent Living, TBI, and Social Skills
- Independent Living, TBI, and Rehabilitation
About Answered Questions
Each month, we look through the searches on our blog and through the information requests made by our patrons who speak Spanish and pick a topic that fills the largest need. Each resource mentioned above is associated with this month’s information need. We search the various Spanish language news sources and feeds throughout the month to bring you these articles. With the exception of the NIDILRR Projects, From the NARIC Collection, and Further Investigation, all the linked articles and resources are in Spanish – any that are in English will be clearly marked.