In this post in our series If you liked…, we will update our post What are Patau Syndrome and Edward Syndrome? This particular post is very popular amongst our readers interested in developmental disabilities. Patau and Edward syndromes are very rare types of developmental disorders and research continues in supporting the health and participation of individuals with these syndromes. Parents and families of children with either of these syndromes may find support and assistance through the Support Organization for Trisomy 18, 13, and Related Disorders (SOFT), which also provides resources and professional literature to medical professionals. The International Trisomy 13/18 Alliance provides research publications, informational booklets, and a list of support groups across the world.
If you would like more information or resources in your area relating to Patau syndrome, Edward Syndrome, or any other developmental disability, please contact NARIC’s information specialists by calling 800/346-2742, via email, or by chat.