Welcome back to our series that highlights NIDILRR’s Outcome Domains. This month, we will be looking at NIDILRR’s Community Living and Participation Outcome Domain. Through this research program, NIDILRR seeks to encourage independent living and community integration, to achieve more successful outcomes for people with disabilities, and to foster the development of innovative methods to achieve these outcomes and to measure achievement.
For Fiscal Year 2019, 36 active projects looked at community living and participation for people with disabilities from different angles. These projects include:
- The Rehabilitation Research and Training Center (RRTC) on Family Support bridges aging and disability research, practice, and policies to generate new knowledge in family supports that contributes to improvements in community living, participation, health and function, and other outcomes for people with disabilities from different racial and ethnic backgrounds who are supported by family members. The RRTC conducts six projects which include Understanding Experiences, Trends, and Needs in Self-Directed Programs, which looks at national trends in self-directed support, and the experience and satisfaction of caregivers in self-directed care, and Parents Taking Action: A Parent Training Program for Latino Families of Children with Autism Spectrum Disorders (ASD), which tests the efficacy of an intervention that engages parents of children with ASD in providing education and training to other parents.
- The Temple University RRTC on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) advances the development of interventions that help to maximize community living and participation of people with severe mental illness (SMI). This RRTC also serves as a national resource center for people with SMI, their families, service and support providers, researchers, policymakers, and other stakeholders. As a resource center, the TU Collaborative also produce evidence-based resources on a variety of topics related to SMI, community living, and participation, which include resources on the basics of community inclusion, education, employment, physical activity, and welcoming communities. As part of the Center’s goal to encourage people with SMI to participate in the community, researchers create a yearly calendar that is based on research done by the Center and which provides monthly goals that promote community living and participation.
The projects within the Community Living and Participation Outcome Domain produce peer-reviewed articles, factsheets, videos, guides, and more. Here is a sample of what two of these projects have produced:
- The article, Differences in social connectedness and perceived isolation among rural and urban adults with disabilities, discusses a study that explored how reported satisfaction with social participation and perceived isolation relate to the health of people with disabilities in urban and rural areas. This study found that there were significant associations between reported health and measures of satisfaction with social participation and perceived isolation; an increased number of disability issues, not being employed, and living with at least one person were associated with reduced with social participation; and the number of disability issues and not being employed were associated with an increase in perceived isolation. The authors write that these data suggest that people with disabilities living in rural areas may be have an increased risk for low levels of satisfaction with social participation and that people with disabilities living in urban areas may have an increased risk for feeling isolated. This study and article were published by the Place-based Solutions for Rural Community Participation, Health, and Employment and the Collaborative on Health Reform and Independent Living.
- The article, Attachment, hope, and participation: Testing an expanded model of Snyder’s hope theory for prediction of participation for individuals with spinal cord injury, discusses a study that evaluated an expanded model of Snyder’s hope theory, which is comprised of constructs from hope theory and attachment theory, for predicting participation outcomes of people with spinal cord injury (SCI). The study found that secure attachment, avoidant attachment, anxious attachment, and the hope constructs were significantly related to the participation of people with SCI. The results of this study provide support for the use of hope-based interventions by rehabilitation practitioners for improving the global participation outcomes for people with SCI who experience attachment-related difficulties. This study and article were published by the Rehabilitation Research Training Center on Employment of Individuals with Physical Disabilities.
If you would like to learn more about NIDILRR’s Outcome Domains, other projects or products within the Community Living and Participation Outcome Domain, or would like more information about community living and participation for people with disabilities, please contact NARIC’s information specialists.