Answered Questions: Monthly News for the Disability Community For November 2015

Answered Questions is a monthly resource for the Spanish-language disability community that fills an information need. Each month, we look through the searches on our blog and through the information requests made by our patrons who speak Spanish and pick a topic that fills the largest need. Each resource mentioned below is associated with this month’s information need. We search the various Spanish language news sources and feeds throughout the month to bring you these articles. With the exception of the NIDILRR Projects and Further Investigation, all the linked articles and resources are in Spanish – any that are in English will be clearly marked. This month’s question is: What are craniofacial anomalies in children? These anomalies include cleft lip and palate, craniosynostosis, hemangioma, and vascular malformation. This edition of Answered Questions includes items that define some of the anomalies, treatment options, and rehabilitation.

NIDILRR Research:

  • Cleft lip and cleft palate: What to know and who can help. (J557735). (In English).
    This article presents an overview of cleft lip and cleft palate. It describes both conditions and provides information on treatment and additional resources.

Research

  • Cleft lip and cleft palate. (MedlinePlus)
    This article describes cleft lip, cleft palate, and similar conditions. It includes information on treatments, therapies, specialists, and other areas. Each section includes links to specific topics including financial aid, dental care, treatments for adults, and a link for parents with children cleft lip and cleft palate.
  • Craniosynostosis (Dr. Francisco Goyenechea Gutiérrez; Dr. Ricardo Hodelin Tablada)
    This paper describes craniosynostosis and includes sections on its history, classification, diagnosis, treatment, and causes. There are several syndromes that fall within the craniosynostosis family, including Crouzon Syndrome, Apert’s Syndrome, Pfeiffer’s Syndrome, and Chotzen Syndrome.
  • Vascular malformations and hemangiomas (The University of Chicago Medicine)
    This article defines vascular malformations and hemangioma, describes the differences between the two conditions, describes their causes, and describes treatments for hemangiomas and vascular malformations. It also provides links to resources for craniofacial anomalies.

Rehabilitation:

  • Craniosynostosis Repair (MedlinePlus)
    This article from the US National Library of Medicine describes the repair of craniosynostosis as a surgery that repairs the prematurely fused cranial bones in children. The article includes a description of the surgery, the risks, and what happens before and after the surgery, along with alternative names for Craniosynostosis and references.

Treatments:

  • Cleft lip and cleft palate repair (MedlinePlus)
    MedlinePlus describes in this article how a cleft palate and/or cleft lip are repaired through surgery. It includes risks of surgery; what to do before, the day of, and after surgery; and what to expect. It also includes alternate names for cleft lip, cleft palate and the type of surgery.
  • Stem cells can help correct cleft lip (Informador.mx)
    According to the article, the use of stem cells from the umbilical cord allow scarring and natural recuperation of the bone. Drs. Guillermo Trigo and Gustavo Moviglia from Maimónides University in Buenos Aires, Argentina are the first to study the possibility of treating cleft lips and palates through the use of stem cells. They have found that treatment with stem cells have provided better results than traditional surgery. The researchers have found that not all cases are eligible to be treated with stem cells as they have worked only with newborn children whose parents had preserved the stem cells from the umbilical cord and had not had previous surgeries.

Human Interest:

  • Putting smiles back on faces (Health Xchange) (English)
    Dr. Vincent Yeow, head of the Cleft and Craniofacial Centre at KK Women’s and Children’s Hospital, is the field medical director of Operation Smile Singapore. He began doing surgical missions to places like Indonesia, the Philippines, Uzbekistan, Nepal, and Laos in 1995. He and a team of 10 to 40 people that comprises of surgeons, anesthetists, nurses and administrators have performed surgeries for the poor in those countries who have cleft lips, cleft palates, and other facial deformities.

Resources

  • Cleft Lip and Cleft Palate: A Guide for Parents (Spain) – This guide from the Department of Social, Family, Youth, and Sport Services of Navarra, Spain provides definitions of cleft palate and cleft lip, information on nutrition and nursing for children with these conditions, and what to expect before and after surgery. It also includes information on orthopedic and dental treatments and interventions, along with a glossary of terms and a bibliography.
  • National Institute of Dental and Craniofacial Research (NIDCR) (US) – NICDR’s mission is to improve oral, dental, and craniofacial health through research, training, and dissemination of information. Their website has information on oral and dental health, information on clinical studies, and links to other websites that also provide useful information.
  • Children’s Craniofacial Association (US) – Children’s Craniofacial Association (CCA) educates individuals and families with craniofacial differences, health care providers, and the general public through the dissemination of information; promotes public awareness of craniofacial conditions and social acceptance of people with facial differences; and provides a database filled with resources that include support groups. (In English).

Further Research:

* REHABDATA:

* PubMed:

* CIRRIE:

 

About mpgarcia

I'm the Bilingual Information/Media Specialist at NARIC.
This entry was posted in Publications, Respuestas a las Preguntas, Uncategorized and tagged , , , , , , . Bookmark the permalink.

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