Answered Questions: Monthly News for the Disability Community

Answered Questions is a monthly resource for the Spanish language Disability Community that fills an information need. Each month, we look through the searches on our blog and through the information requests made by our patrons who speak Spanish and pick a topic that fills the largest need. Each resource mentioned below is associated with this month’s information need. We search the various Spanish language news sources and feeds throughout the month to bring you these articles. With the exception of the NIDRR Projects and Further Investigation, all the linked articles and resources are in Spanish – any that are in English will be clearly marked. This month’s question is: What are Developmental Disabilities? This edition of Answered Questions includes items that either describe a specific developmental disability, or generally discuss developmental disabilities.

NIDRR Projects:

Parents Taking Action: A Parent Training Intervention for Latino Immigrant Families (Project Number: H133G140128) – (In English).
This project evaluates a parent education program designed to meet the needs of Latino parents of children with autism spectrum disorders (ASD). The curriculum for this program is delivered by community health educators and/or promotoras de salud, who are parents of children with autism. Participants are Spanish-speaking mothers who have a child between the ages of 2 and 8 with an ASD and who receive 14 weeks of home visits from the promotora. The promotora delivers intervention content using an interactive approach. The intervention includes understanding autism symptoms and diagnosis, evidence-based interventions, advocacy, teaching parents how to improve their child’s social and communication skills, and explaining their child’s behavior to others.

Research:

Attention Deficit and Hyperactivity Disorder (ADHD) – (CIRRIE).
This article defines attention deficit and hyperactivity disorder (ADHD); explains the etiology, causes, and clinical manifestations; defines the clinical criteria for diagnosis of ADHD; and explains how ADHD is identified. This article also shares types of interventions for ADHD, including interventions that are culturally and socially appropriate. The article concludes with Internet and bibliographic references and includes a further reading section, a way to cite the article, and includes links to other formats and languages.

Technology:

Researchers from Seville, Spain Develop a Game for People with Cerebral Palsy (SiNC).
A group of researchers from the University of Seville have developed a video game for people with cerebral palsy (CP). The objective, according to the researchers, is to improve the lives of people with CP through an app that assists them to acquire and consolidate knowledge through multimedia content designed for them. The software for the video game app can be configured to the needs and abilities of each individual user with CP. The researchers plan to work with people with different types of developmental disabilities with the objective of studying the possibilities of adapting this app to their specific needs and abilities.

Rehabilitation:

Fragile X Syndrome Treatment from Early Child Care in Spain (Clínica y Salud).
The main objective of the study was to examine a comprehensive description of two people with Fragile X Syndrome (FXS) who help to increase the knowledge about syndrome characteristics and to recognize the importance of an individualized evaluation of children with this kind of syndrome. The study also helped to recognize that heterogeneity exists within this syndrome. The study also studied the effectiveness of the work done at centers, such as the Children’s Center for Early Intervention and Development in Spain, that deal with FXS, especially in the language and cognitive areas.

Education:

10 Years of Education and Investigation on Tourette Syndrome (Centers for Disease Control and Prevention).
Gilles de la Tourette Syndrome (also known as Tourette syndrome or TS) is a neurological condition that may have associated developmental delays. According to the Centers for Disease Control and Prevention (CDC) TS can cause people “to have tics, which are sudden twitches, movements, or sounds that people do repeatedly.” (CDC) The symptoms of TS commonly begin between the ages of 5 and 10 and can vary from mild to severe (and can change over time). It is not known at this time how many people have TS.

Inclusive Education: Manual of Curricular Accommodations (Ministry of Education of Peru).
The goal of this manual is to be an informative toolkit for directors, teachers, and parents and includes guidelines, recommendations, and contributions related to the development of inclusion in general education. The manual also provides information on the special education needs of children with autism and other developmental disorders.

What is…?:
More children are harmed by the consumption of alcohol during pregnancy than previously thought, according to a study (44 – El Canal de las Noticias)
A recent study suggests that up to 1 in 20 children in the US could have health or behavioral problems related to being exposed to alcohol before being born. The study also found that 2.4 and 4.8 percent of those children have a type of fetal alcohol syndrome (FAS). Some of the symptoms of FAS include facial anomalies, anomalies in the structure of the brain, and growth issues. Children with the less extreme form of FAS may have deficiencies in their capacity to finish tasks and/or behavioral problems. Dr. Janet Williams, MD, one of the investigators, stated, “Alcohol is a neurotoxin, and the exposure to alcohol is the principle preventable cause of congenital defects and intellectual and neurodevelopmental disabilities.”

Human Interest:
Project Abby and Kids with Autism in Latin America (PR.com) – (In English).
It is estimated by the World Health Organization (WHO) that 1 in 160 children in the world have autism. There is no official data in Mexico as to how many people have been diagnosed with autism. Autism is also not recognized for health insurance purposes in Mexico and technology development for their autism community is minimal. Project Abby is one company’s way of helping empower families and to improve the lives of children with autism in Mexico by creating toys and technological tools that help kids in general learning and effective communication skills.
Resources:

Further Research:

Spanish and Cerebral Palsy

About mpgarcia

I'm the Bilingual Information/Media Specialist at NARIC.
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