#COVID19 Resources from the NIDILRR Grantee Community

Updated January 26, 2021

Many members of the NIDILRR grantee community have responded to the coronavirus pandemic (COVID-19) by publishing, presenting, or curating resources to support the continued independence and participation of people with disabilities and their families, and the professionals who work with them. We are actively collecting these resources as they are published. This list is growing every week, so check back regularly. New items are posted first; older items are listed alphabetically by project or center, and the date of the most recent update will be posted above.

NEW Rehabilitation Research and Training Center for Place-Based Solutions for Rural Community Participation, Health, and Employment (RTC: Rural)

This center has published an article, A cross-sectional analysis of trust of information and COVID-19 preventative practices among people with disabilities, online in Disability and Health Journal. The authors surveyed people with disabilities in rural and nonrural communities, finding variance across communities and disability types in levels of trust of information about COVID-19 and in adherence to community health guidelines. The findings highlight the importance of collaborating with trusted partners in the disability community to promote effective messaging. The article is available online in full text.
Keywords: Rural communities, information, public health

NEW Rehabilitation Engineering Research Center on Technology for People Who are Deaf or Hard of Hearing

Christian Vogler, PhD, principal investigator for the NIDLRR-funded Rehabilitation Engineering Research Center on Technology for People who are Deaf or Hard of Hearing, co-authored an article, Telehealth and telework accessibility in a pandemic-induced virtual world, for the University of Colorado Law Review. The article explores how the coronavirus pandemic has undermined equal access to employment and healthcare for Americans who are Deaf, hard of hearing, or DeafBlind as these functions migrate toward telework and telehealth using videoconference platforms. The authors discuss the legal issues as well as remedies for telework and telehealth accessibility.
Keywords: telehealth, telework, accessibility

ADA National Network of Regional Centers

The ADA National Network and its 10 regional centers help people with disabilities, employers, and public entities to understand their rights and responsibilities under the Americans with Disabilities Act (ADA). The regional centers are operating, though their physical offices may be closed due to stay-at-home orders. Call 800/949-4232 to reach the center for your region. The National Network and the centers host a Twitter chat (4/22) on ADA, Healthcare, and Effective Communication. Some of the centers have published resource pages.
Keywords: ADA, accessibility, healthcare, barriers, civil rights, effective communication, rural health, telehealth, mental health

Americans with Disabilities Act Participation Action Research Consortium (ADA PARC)

People with Disabilities in COVID-19: Fixing Our Priorities. Published in the American Journal of Bioethics specially issue on COVID-19. From the introduction: “While the COVID-19 pandemic has wreaked disproportionate havoc in marginalized racial/ethnic communities, little attention has been given to people with disabilities in the press, public health surveillance, and research. A few articles, including this special issue, consider the discriminatory nature of categorical exclusion from and guidelines for the rationing of medical equipment and services. While important, this focus captures only one—late-stage—injustice toward people with disabilities in the pandemic, and leaves untouched other important periods. We focus on these understudied periods. First, we describe the most relevant and unique disadvantages that people with disabilities experience in health care and community living that place them at greater risk for disparate COVID-19 outcomes. Then we highlight the need to ensure accurate data collection in order to better understand COVID-19 disparities and improve prevention and treatment of, and preparedness for, current and future infectious disease pandemics among people with disabilities.”
Keywords: Ethics, disparities, data collection

Boston-Harvard Burn Injury Model System Center (BH-BIMS)

The researchers at the BH-BIMS published a letter to the editor in the journal Burns, COVID-19 pandemic and the burn survivor community: A call for action. The letter to the editor highlights the impact of the coronavirus pandemic (COVID-19) on people with burn injury, including reduced access to inpatient and outpatient medical and therapeutic care, loss of peer support leading to increased isolation, and triggers for post-traumatic stress disorder. The authors also suggest resources for support and education for burn survivors and care providers. The article is available free in full text through PubMed.

The Center for Enhancing Neurocognitive Health, Abilities, Networks, & Community Engagement (ENHANCE).

The goal of the ENHANCE project is to support the ability of older adults with cognitive disabilities to live independently in the community. This center has published an article, When Going Digital Becomes a Necessity: Ensuring Older Adults’ Needs for Information, Services, and Social Inclusion During COVID-19, in the Journal of Aging & Social Policy. The article examines the immediate need for digital literacy for older adults who must suddenly learn to interact with health care providers, social services, and friends and family.

Center for Research, Training, and Dissemination of Family Support for People with Disabilities Across the Life Course.

This center conducted a survey of caregivers and non-caregivers to understand the impact of the pandemic. The survey found that family caregivers reported more negative effects from the pandemic than non-caregivers. They were more likely to be experiencing isolation, food insecurity, and financial hardship, among other issues. Family caregivers also reported that the pandemic had increased their caregiving responsibilities, and that providing care was more emotionally, physically, and economically difficult. Female caregivers, minority caregivers, caregivers with less education, caregivers with lower income, younger caregivers, caregivers who care for persons with mental health/behavioral issues, and caregivers who live with the care recipient tended to report greater negative impacts. The report is available in an executive summary, a full report, and an infographic.
Keywords: Caregiving, family caregivers, social isolation, financial impact

Collaborative on Health Reform and Independent Living (CHRIL)

CHRIL and its stakeholder partner American Association on Health and Disability (AAHD) collaborated on a series of short videos on COVID-19 and Disability:

  1. COVID-19 & Disability: Who’s at Risk for Complications?
  2. COVID-19 & Disability: Social Distancing
  3. COVID-19 & Disability: Precautions for People in Wheelchairs
  4. COVID-19 & Disability: Keeping Wheelchairs Clean
  5. COVID 19 & Disability: Being a Self-Advocate
  6. COVID-19 & Disability: Knowing Your Legal Rights

Cognitopia

Cognitopia has developed several NIDILRR-funded technology solutions for people with cognitive and processing disorders such as brain injury and autism. Cognitopia added a collection of COVID-19 resources to the Staying Healthy portfolio in My Life. It’s designed to provide cognitively accessible information related to the coronavirus, including reliable links, instructional videos, personal care routines, and collected other info to help folks get through a difficult time. Cognitopia’s MyLife tool can be used remotely by a student and their support team as they transition from school to college or work. See a set-up example using Jon Student and his transition goals and activities.
Keywords: Cognitive disabilities, community participation, personal care

Community Life Engagement Guidepost Fidelity Scale Development and Testing

Virtual Community Life Engagement. This publication applies the Four Guideposts to Community Life Engagement to selecting and supporting online engagement opportunities for people with intellectual and developmental disabilities: https://covid19.communityinclusion.org/pdf/CLE_issue10_V2_D2.pdf This publication was supported in part by a NIDILRR Field Initiated Research Grant (Community Life Engagement Guidepost Fidelity Scale Development and Testing; # 90IFRE0025) Part of https://covid19.communityinclusion.org/
Keywords: Community living, intellectual and developmental disabilities

Community Living Policy Center

This center conducts research in policies and practices that promote community living outcomes for individuals with disabilities. In response to pending legislation which could impact services and supports for people with disabilities, the center published two briefs: Understanding the Home and Community-Based Services COVID-19 Response Proposal describes bills to increase funding for states’ home and community-based services, specifically how the increased funding would help ensure care at home, minimize wait lists, increase wages for health workers, and provide for sick leave; An Emergency Direct Care Conservation Corps Proposal proposes ways to strengthen the direct care workforce to reduce the spread of COVID-10 and preventable emergency department visits and hospitalization of vulnerable people.
Keywords: Home and Community-Based Services (HCBS), direct support providers, policy, legislation

Langston University Rehabilitation Research and Training Center (LU-RRTC)

The LU-RRTC has released a Policy Research Brief (volume 3, issue 1) titled Forecasting COVID-19 Issues for People of Color with Disabilities While Advancing the Minority-Serving Institution Research Capacity Building Science: A Framework for Federal Agencies. The brief reports on key themes derived from a national listening session titled “Emerging Issues Around COVID-19 and People of Color with Disabilities for Minority-Serving Institution Scientific Workforce Capacity Building”. The report documents potentially useful actionable strategies and proposes a Framework for Advancing the COVID-19 Science Involving People of Color with Disabilities through Minority-Serving Institution Research Capacity Building. 
Keywords: Capacity building

Model Systems Knowledge Translation Center (MSKTC)

MSKTC works with the Spinal Cord Injury, Traumatic Brain Injury, and Burn Injury Model System Centers, developing and curating resources to help people with these injuries, their families and caregivers, and rehabilitation professionals. In this special issue of their monthly newsletter, MSKTC shares resources to help individuals stay healthy during the coronavirus/COVID-19 pandemic.
Keywords: Spinal cord injury, traumatic brain injury, burn injury, health and wellness

Mount Sinai Spinal Cord Injury Model System

This center conducts research and development to help people with spinal cord injury (SCI) recover and return to their communities. Principal Investigator Thomas Bryce, MD, answered Frequently Asked Questions about COVID-19 and SCI for United Spinal. Topics covered included risk of contracting the virus, the impact on respiratory function, and when to consider going to the emergency department.
Keywords: Spinal cord injury, risk factors

National Research Center on Parents with Disabilities and Their Families

This center conducts research and training to support parents with disabilities, help them understand their rights and advocate for services and supports. The Center hosted a Twitter chat Parenting with a Disability During COVID-19:Insights from the #COVIDDisParenting Twitter Chat, where parents with disabilities shared their helpful strategies for staying healthy, active, and engaged; unique concerns and experiences; preparedness and unmet needs; and more. This center also hosts a parenting blog and is accepting articles from parents with disabilities about their COVID-19 experiences (participation closes May 15).

NRCPD also collected blog entries from parents with disabilities about their experiences during the various phases of the pandemic in their communities.
Keywords: Parents with disabilities, parenting

Northern New Jersey Spinal Cord Injury System Center (NNJSCIS)

This center conducts research in interventions in rehabilitation and supports for people with spinal cord injury (SCI). In the COVID-19 and Spinal Cord Injury: Minimizing Risks for Complications podcast NNJSICS director Trevor Dyson-Hudson, MD and Carolann Murphy discuss some of the risks for people with SCI who may have reduced lung and cough function due to paralysis, and techniques and devices they can use to improve their cough. They also discuss the challenges of limiting social or physical contact when working with a personal care attendant, when a personal care attendant is unavailable, and keeping wheelchair contact surfaces clean and disinfected.
Keywords: Spinal cord injury, risk factors, respiratory health, personal care attendants

Rehabilitation Engineering Research Center: Develop and Evaluate Rehabilitation Technology and Methods for Individuals with Low Vision, Blindness, and Multiple Disabilities

This RERC conducts research and development in technology solutions to current barriers to opportunity faced by individuals who are blind, have low vision, and have multiple disabilities. This includes barriers to careers in science, technology, engineering, and mathematics (STEM). The team created an accessible pandemic bulletin, A11y COVID-19, to display data on infection rates that is accessible to screen readers and can be “sonified” on demand. The browser plays a different tone for each level on the graph, rising as the data indicates higher numbers.

Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (RERC-AAC)

This center conducts research and development in AAC, technology that helps people who cannot communicate verbally because of neuromuscular disorders, autism, and other conditions. A recent article from the RERC highlights the need for effective communication to help these individuals understand what is happening and express their needs, wants, and important care details. The article describes how to prepare in advance for someone with complex communication needs, how to support understanding of COVID-19 for whose who may have difficulty understanding complex communication, ways to support expressive communications for someone who cannot rely on speech, and suggestions for healthcare workers providing care for someone who cannot communicate.
Keywords: Accessibility, communication, augmentative and alternative communication

Rehabilitation Engineering Research Center on Improving the Accessibility, Usability, and Performance of Technology for Individuals who are Deaf or Hard of Hearing

The researchers at this RERC assembled three guides to respond to communication issues that have emerged during this crisis: virtual meetings (now ubiquitous for working while under stay-at-home orders) need to be accessible for employees who are Deaf or hard of hearing, and hospital staff need to communicate with patients with hearing loss.
Keywords: assistive technology, inclusion, hearing, workplace accommodations, telework, medical facilities

Rehabilitation Research and Training Center for Learning and Working During the Transition to Adulthood (Transitions ACR).

This center focuses on young people with mental health conditions as they transition from school to college and/or the workplace. COVID-19 Resources for Youth and Young Adults features curated content from including news stories from around the country, a Google Spreadsheet with hundreds of resources for youth, young adults, families, college, educators, and supporters; webinars on methods to support college students with mental health conditions who have been affected by disruptions in school; and selections from Transitions ACR publications and products which may be of help to students, administrators, and counselors.
Keywords: Psychiatric disabilities, youth, young adults, transition, college

Rehabilitation Research and Training Center for Pathways to Positive Futures

Telehealth for Transition Age Youth and Young Adults: Privacy, Emotional Safety and Welfare During Covid-19 and Beyond (PDF) provides initial guidance for protecting the emotional safety, privacy and welfare of transition-age youth and young adults while they are participating in virtual mental health care. This list, compiled via consultation with youth peer support specialists, clinicians, and supervisors who work with young people, is intended as a starting point as services evolve to meet the challenges of this new era. This center also hosted a webinar, Supporting Youth Peers during COVID-19.
Keywords: Youth, young adults, mental. health, peer counselors

Rehabilitation Research and Training Center for Place-Based Solutions for Rural Community Participation, Employment, and Health (RTC: Rural)

This center conducts research and training activities that address the unique needs of people with disabilities living in rural communities. The staff is assembling resources to inform people living in these communities about the virus in general, ways to connect with services, and more.
Keywords: Rural, remote services, vocational rehabilitation, geography, economics, healthcare

Rehabilitation Research and Training Center on Community Living and Participation for People with Serious Mental Illness

This center focuses on how people with serious mental illness engage with their community, from family leisure to creating welcoming workplaces and community spaces.
Keywords: Psychiatric disabilities, community participation, social isolation

  • Keeping Connected while Staying Apart includes a running list of resources to stay connected and engaged, the powerpoint from A National Conversation on Community Participation (3/26) and links to ideas for staying engaged (virtual theater, online class communities, art and learning programs).
  • Resources for Remote Community Participation (PDF) includes an extensive list of high-tech, low-tech, and no-tech ways to stay connected.
  • ConnectionsRx, a new program providing one-to-one support for individuals to identify interests AND the opportunity to connect to meaningful activities through a support group on Facebook. 
  • Fall 2020 Back to Campus Planning Guide for College Students with Mental Health Conditions provides helpful tips for college students with mental health conditions, including considerations for remote, in-person, and hybrid learning formats. The guide also covers self-advocacy planning and campus engagement planning strategies that will help students maintain their academic success and well-being as a college student in 2020.

Rehabilitation Research and Training Center on Employment of Individuals with Blindness and Other Visual Impairments

Staff from this center led a recent forum discussion on remote training in vocational rehabilitation, through the Older Individuals Who are Blind – Technical Assistance Center (OIB-TAC). Since most training for people with visual impairment occurs face-to-face, many professionals are searching for new procedures to offer training during quarantines and physical distancing. Sylvia Stinson-Perez and Kendra Farrow, both Certified Vision Rehabilitation Therapists, facilitated discussions on working remotely, providing services and training in a remote environment, and identifying helpful resources.
Keywords: Blindness, visual impairments, employment, remote training, vocational rehabilitation

Rehabilitation Research and Training Center on Employment of People with Intellectual and Developmental Disabilities

This center focuses on the practices and policies that support successful employment of people with intellectual and developmental disabilities (I/DD), including autism spectrum disorder (ASD). The center has set up a collection of videos for families and professionals supporting individuals with ASD. How to: Teaching Handwashing explains how to cover hand hygiene, learning styles and challenges to consider, and examples of teaching strategies. How to: Handwashing for Individuals with ASD demonstrates hand hygiene in simple, straightforward language and images.
Keywords: Intellectual and developmental disabilities, autism, videos, personal hygiene

Rehabilitation Research and Training Center on Employment for People with Physical Disabilities

Accommodations & Return to Work Amidst the COVID-19 Pandemic provides strategies to support the physical and mental health of a company’s workforce during the pandemic. This includes how to ensure the safety and accessibility of the workplace and ways to accommodate teams in remote work environments.

Getting Back to Work After COVID-19: Lingering Symptoms Present Challenges for Employers and the ADA. The article discusses the impact of COVID-19 on employees and employers, including challenges related to the Americans with Disabilities Act (ADA) and the possibility of significant increase in accommodation requests. Among the challenges are post-COVID syndrome, a collection of lingering symptoms such as fatigue and brain fog, which may prompt employees who had the virus to request accommodations. In addition, people at higher risk for adverse outcomes from the virus may request accommodations as companies reopen their workplaces.
Keywords: Employment, workplace accommodations, return to work

Rehabilitation Research and Training Center on Employment Policy and Measurement (EP-RRTC)

The EP-RRTC hosts monthly discussions on the state of employment of Americans with disabilities as reported in the Bureau of Labor Statistics Jobs Report, along with related disability employment issues. In response to the pandemic, the EP-RRTC hosts monthly National Trends in Disability Employment (nTIDE) Special Reports – Implications of COVID-19, where a team of experts share their latest perspectives, based on data from a population survey released mid-month, on the coronavirus pandemic and its implications on employment, emerging bills and policies, and resources for the days ahead. The discussion are archived for future viewing.

Rehabilitation Research and Training Center on Family Support

This RRTC is conducting a survey about issues related to COVID-19 and its impact on families supporting members with disabilities. The survey covers impacts on employment, financial well-being, social interactions, health behaviors, physical health, and mental health.  It also asks whether anyone in the household has been diagnosed with COVID-19 or are experiencing related symptoms. If you are providing unpaid care to a loved one because of an illness, disability, or functional problem, you will also be asked detailed questions about how COVID-19 has affected your caregiving duties and ability to provide quality care.  These answers will also be extremely helpful in designing programs to help caregivers during this difficult time.  Your responses will inform professionals and policy makers who are designing programs and interventions to help people cope with this serious public health crisis. 

Rehabilitation Research and Training Center on Integrated Healthcare and Self-Directed Recovery

This center creates, modifies, and improves self-directed models of medical care and mental health services that promote recovery, health, and employment for people with psychiatric disabilities. Managing Your Wellness During the COVID-19 Outbreak offers a collection of wellness self-management strategies and resources. Learn how to manage stress, cope with anxiety, combat loneliness, or explore virtual distractions with art, music, museum tours, and more. The collection also includes resources for physical health and wellness, supports for behavioral health providers and other support personnel, and resources to help children, teens, and young adults cope during the outbreak. This center has published a Self-Management Education and Support Referral Algorithm, designed to help primary care providers follow guidelines recommended by the Institute of Medicine to choose a self-management program to meet their patients’ needs at different stages of emotional distress. The algorithm identifies what kinds of knowledge patients need, the self-management programs that provide it, and how to locate these programs in their local communities. Modeled on the American Diabetes Association’s patient education algorithm, the algorithm features peer-delivered self-management programs because of their strong evidence-base and successful use in managing mental health conditions.
Keywords: Psychiatric disabilities, health and wellness, telehealth

University of Alabama at Birmingham Spinal Cord Injury Model System Center (UAB-SCIMS)

UAB-SCIMS conducts research that supports people with SCI, their families, and the rehabilitation professionals who support them. The video Tips for People with SCI During COVID-19 offers tips for individuals to maintain their health and daily living from UAB-SCIMS psychologists. Tips include keeping an eye on secondary conditions to avoid the need for hospital visits, maintaining a routine, getting exercise, and maintaining social contact.

UABSCIMS had dedicated the 2020 issue of their Pushin’ On newsletter to COVID-19. This issue features an article on staying healthy to avoid the impact of the virus, as well as articles on technology for independence and opportunities to participate in research.
Keywords: Spinal cord injury, health and wellness, community participation

University of Alabama at Birmingham Traumatic Brain Injury Model System Center (UAB-TBIMS)

UAB-TBIMS conducts research supports people with TBI, their families, and the rehabilitation professionals who support them. The video Tips for People with TBI and their Families During COVID-19 offers suggestions for individuals to maintain their health and daily living from two UAB-TBIMS psychologists. Tips include maintaining a routine, staying informed and following recommended prevention guidelines, asking for help, and doing what you can to maintain your physical and mental health like exercise, learning activities, and keeping medications up to date.
Keywords: Traumatic brain injury, health and wellness, community participation

Workplace Accommodation Expert Support System (Work ACCESS).

This center has published several factsheets, available through the Tools for Life wiki, on accommodation problems and solutions associated with telework and reopening/return-to-work, as well as a telework platform accessibility matrix. This center also hosted a webinar on the accessibility of telework platforms, also available through the Tools for Life wiki.

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21st Century Innovation – A Quick Look at High Tech Research from the NIDILRR Community

Last week’s Consumer Electronics Show featured cutting-edge technology for home, work, health, entertainment, transportation, and so much more. Amid the concept cars and homes of the future was technology that is already changing lives. Technologies like virtual reality, autonomous vehicles, robotics, smart homes, wearables, and brain computer interfaces all show promise to support the full participation of people with disabilities in their communities. Here is a quick look at some recent NIDILRR-funded research utilizing these emerging technologies:

Virtual Reality

Four current projects focus on virtual reality or VR. These include studies using VR to improve job reentry for adults with traumatic brain injuries and for spatial retraining to improve neglect in stroke survivors, using VR to help older adults with disabilities learn to use smart home technologies, and building in accessibility in VR technologies. Completed projects included using simulated audio for orientation and mobility training for blind adults, using VR for social information processing, and using VR for problem solving skill training, among others. Explore almost 25 years of virtual reality research and development projects.

Autonomous Vehicles

Three current projects examine the use of autonomous vehicle technologies. These include field-initiated projects on driving performance of people with Parkinson’s who use these technologies and ways to optimize accessible public transportation, as well as a Rehabilitation Engineering Research Center (RERC) focused on physical access and transportation. Explore current autonomous vehicle research and development.

Robotics

Seven current projects focus on some aspect of robotics to support people with disabilities. These include three RERCs on robotics: wearable robotics for independent living, robotics for rehabilitation, and robotics for home-based assessment and treatment for individuals with neurologic injury. Other projects include robotic assistive arms for assistance with activities of daily living, robotic propulsion for manual wheelchairs, and robotic gait training. Explore more than 20 years of research and development in robotics for rehabilitation and independent living.

Brain Computer Interfaces

One project is currently investigating the use of brain-computer interfaces (BCI) to operate commercial augmentative and alternative communication systems. Such systems would give people with conditions like amyotrophic lateral sclerosis (ALS) and stroke the ability to communicate. Previous research and development in this area looked at the use of BCI as a job platform for individuals with severe movement disorders and to operate assistive technology. Explore recent research in BCIs.

These are just a few examples of cutting-edge research and development taking place at universities, rehabilitation hospitals, and large and small businesses and organizations across the NIDILRR grantee community. We are very excited to see what comes next!

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Innovación del siglo XXI – Un vistazo rápido a la investigación de alta tecnología de la comunidad de NIDILRR

El Espectáculo de Electrónicas para Consumidores de la semana pasada presentó tecnología de vanguardia para el hogar, trabajo, salud, entretenimiento, transportación, y mucho más. En medio de los autos y hogares conceptuales del futuro, estaba la tecnología que ya está cambiando vidas. Las tecnologías como la realidad virtual, los vehículos autónomos, la robótica, los hogares inteligentes, los dispositivos portátiles, y las interfaces cerebro-computador muestran una promesa para apoyar la plena participación de personas con discapacidades en sus comunidades. Aquí hay un vistazo rápido a algunas investigaciones recientes financiadas por NIDILRR que utilizan estas tecnologías emergentes:

La realidad virtual
Cuatro proyectos actuales se centran en la realidad virtual o RV. Estos incluyen estudios sobre utilizando RV para mejorar el reingreso al trabajo para adultos con lesiones cerebrales traumáticas y para el reentrenamiento espacial para mejorar la negligencia en los sobrevivientes de accidentes cerebrovasculares, usando RV para ayudar a los adultos mayores con discapacidades a aprender a usar tecnologías inteligentes, y el desarrollo de accesibilidad en las tecnologías de RV. Los proyectos completados incluyeron el uso de audio simulado para la orientación y entrenamiento de movilidad para los adultos ciegos, el uso de RV para el procesamiento de información social, y el uso de RV para la capacitación en habilidades de resolver problemas, entre otros. Explore casi 25 años de proyectos de investigación y desarrollo de realidad virtual (en inglés).

Vehículos autónomos
Tres proyectos actuales examinan el uso de tecnologías de vehículos autónomos. Estos incluyen proyectos iniciados en el campo sobre el rendimiento de conducir de personas con enfermedad de Parkinson que usan estas tecnologías y las maneras para optimizar la transportación pública accesible, así como un Centro de Investigación de la Ingeniería de Rehabilitación (RERC, por sus siglas en inglés) centrado en el acceso físico y la transportación. Explore la investigación y el desarrollo actuales sobre los vehículos autónomos (en inglés).

La robótica
Siete proyectos actuales se centran en algún aspecto de la robótica para apoyar a las personas con discapacidades. Estos incluyen tres RERC sobre la robótica: La robótica portátil para la vida independiente, la robótica para la rehabilitación, y la robótica para la evaluación y el tratamiento basados en el hogar para personas con una lesión neurológica. Otros proyectos incluyen brazos de asistencia robóticos para ayudar con las actividades de la vida diaria, propulsión robótica para las sillas de ruedas manuales, y el entrenamiento robótico de la marcha. Explore más de 20 años de investigación y desarrollo en la robótica para la rehabilitación y vida independiente (en inglés).

Interfaces cerebro-computadora
Un proyecto está actualmente investigando el uso de interfaces cerebro-computadora (ICC) para operar los sistemas de comunicación aumentativa y alternativa comercial. Tales sistemas darían a las personas con enfermedades como la esclerosis lateral amiotrófica (ELA) y los accidentes cerebrovasculares la capacidad de comunicarse. La investigación y el desarrollo anterior en esta área analizaron el uso de ICC como una plataforma laboral para personas con trastornos de movimiento severos y para operar la tecnología de asistencia. Explore las investigaciones recientes en ICC (en inglés).

Estos son solo algunos ejemplos de la investigación y el desarrollo de vanguardia que se llevan a cabo en universidades, hospitales de rehabilitación, y empresas y organizaciones grandes y pequeñas en toda la comunidad de concesionarios de NIDILRR. ¡Estamos muy emocionados de ver lo que viene más adelante!

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Preguntas y Respuestas: Noticias Mensuales para la Comunidad de la Discapacidad para Enero de 2021 sobre los Padres con Discapacidades

Preguntas y Respuestas es un recurso mensual para la Comunidad de la Discapacidad de habla hispana que llena una necesidad de información. La pregunta de este mes es Mi pareja y yo estamos a punto de tener nuestro primer hijo y tengo una discapacidad. ¿Qué recursos e información están disponibles para padres con discapacidades? Este número de Preguntas y Respuestas incluye artículos que abordan las lagunas de conocimientos sobre los padres con discapacidades; exploran las necesidades de apoyo de padres con discapacidades y el potencial de una intervención de apoyo; discuten los apoyos asequibles y accesibles para padres con discapacidades psiquiátricas; y discuten estrategias compartidas por madres con discapacidades físicas. Obtenga más información sobre Preguntas y Respuestas.

Proyectos Financiados por NIDILRR:

Padres Empoderando a Padres: Centro Nacional de Investigación para los Padres con Discapacidades y Sus Familias aborda las lagunas de conocimiento sobre los padres con discapacidades y sus familias a través de la investigación basada en la población y análisis de conjuntos de datos para informar la política y práctica; y el análisis sistemático de legislación estatal y políticas de bienestar infantil para identificar los facilitadores y barreras al cambio sistemático. Los investigadores están desarrollando, adaptando, probando, y ampliando intervenciones para los padres con discapacidades. El centro pone a disposición recursos, instrumentos, y materiales de capacitación e intervención a través de su portal accesible en línea. Este centro también apoya el sitio web Proyecto para Padres con Discapacidades, donde los padres y miembros de la familia pueden interactuar, compartir conocimientos y empoderarse mutuamente. Los padres con discapacidad pueden compartir sus experiencias con este centro, que pueden publicarse en el blog del centro.

De la Colección de NARIC:

El artículo, Padres con discapacidades: Un estudio de caso que explora las necesidades de apoyo y el potencial de una intervención de apoyo, destaca las experiencias, necesidades, y fortalezas de padres con discapacidades, y explora los impactos de una intervención de apoyo a los padres llamada Planificación-Centrada-en-los-Padres. Esta intervención fue diseñada para ayudar a las personas con discapacidades a planificar sus funciones como padres y proveedores de atención con un énfasis tanto en la planificación de los padres para el futuro de sus propias familias como en la expansión y aprovechamiento de apoyos informales e informales. Los investigadores analizaron cuatro estudios de caso y encontraron que los padres con discapacidades a menudo tenían un número limitado de apoyos formales e informales, que las fuentes de apoyo informal para los padres con discapacidades a menudo tenían sus propias necesidades insatisfechas, y que las redes de apoyo generales de padres con discapacidades eran frágiles. Los investigadores también encontraron que, incluso cuando participan en una intervención de planificación centrada en los padres que puede no extender sus redes de apoyo, estos padres a menudo toman medidas para alcanzar sus metas de apoyo identificadas por ellos mismos.

El artículo, Las disparidades en los servicios de protección infantil y las enfermedades mentales graves: Resultado de una encuesta nacional (en inglés) del Centro de Investigación de Rehabilitación y Capacitación (RRTC, por sus siglas en inglés) de la Universidad de Temple sobre la Vida Comunitaria y Participación de Personas con Enfermedad Mental Grave (TU Colaborativa) (en inglés), discute un estudio que determinó la prevalencia de la crianza de los hijos entre padres con y sin enfermedades mentales grave (EMG) y examinó si había una diferencia en la participación de los servicios de protección infantil (SPI) entre los dos grupos. Los resultados del estudio mostraron que la prevalencia de la paternidad era similar entre las personas con (69 por ciento) y sin (71 por ciento) EMG. Sin embargo, los padres con EMG tenían aproximadamente 8 veces más probabilidades de haber experimentado un contacto con SPI y 26 veces más probabilidades de tener un cambio en los arreglos de vida en comparación con los padres sin EMG. Los hallazgos de este estudio respaldan la necesidad de una mayor atención a la paternidad entre las personas con EMG y una mejor comprensión de los factores asociados con la participación de SPI para reducir las disparidades identificadas entre los padres con y sin una enfermedad mental. Se encuentra disponible un resumen de Enfoque De Investigación de este artículo de fácil lectura.

Enfoque De Investigación:

Según el Instituto Nacional de Salud Mental (en inglés), alrededor de 11 millones de adultos en los EEUU tienen una discapacidad psiquiátrica. Muchos adultos con discapacidades psiquiátricas son padres y es mucho más probable que los tribunales o las agencias de bienestar infantil cuestionen sus habilidades como padres que sus contrapartes sin discapacidades psiquiátricas. El artículo, Los Padres con Discapacidades Psiquiátricas Pueden Beneficiarse de Apoyos Legales, Accesibles, y Asequibles, discute entrevistas realizadas por el Centro Nacional para los Padres con Discapacidades y Sus Familias. A partir de estas entrevistas, los investigadores encontraron que las respuestas de los padres se centraron en tres temas principales: la comprensión de la salud mental por parte de los profesionales legales conduce a mejores experiencias para los padres; se necesita la ayuda de profesionales legales más allá de la sala del tribunal; y los padres tienen necesidades legales continuas.

Las mujeres con discapacidades físicas tienen las mismas probabilidades de ser madres que las mujeres sin discapacidades de edades similares y pueden necesitar adaptaciones para cuidar a sus hijos pequeños. El artículo, Madres con Discapacidades Físicas Comparten Estrategias para Cuidar a Sus Hijos Pequeños, analiza un estudio del Centro Nacional de Investigación para los Padres con Discapacidades y Sus Familias (completado bajo una subvención anterior de NIDILRR) para identificar y describir estrategias de adaptación que las madres con discapacidades utilizaron para cuidar a sus hijos pequeños. Los investigadores encontraron que las madres con discapacidades físicas pueden usar una variedad de estrategias para cuidar a sus hijos de manera efectiva, desde los equipos adaptivos hasta la ayuda de un co-padre. Los investigadores notaron que las comunidades de apoyo por compañeros en línea y en persona pueden ser un recurso vital para que las madres con discapacidades compartan información entre ellas.

Enfermería Familiar:

Los padres con discapacidades de aprendizaje plantean cuestiones profundas a la filosofía y práctica de enfermería familiar. La enfermería familiar es una práctica donde las enfermeras evalúan la salud de la familia entera para identificar posibles problemas de salud y factores de riesgo, desarrollar intervenciones, y apoyar la salud de la familia entera. El artículo, Enfermería familiar y padres que tienen una discapacidad de aprendizaje (en inglés), explora el tema olvidado de los adultos con discapacidad de aprendizaje y los problemas que enfrentan cuando se convierten en padres. El artículo también examina la cuestión de los derechos de los padres con discapacidades de aprendizaje e ilustra que cuando estos derechos no se respetan aumentan la vulnerabilidad de estos adultos y sus hijos. Finalmente, el artículo discute las implicaciones de estos temas en el contexto de la práctica de enfermería infantil.

Resultados de Salud:

El artículo, ¿Importan la discapacidad, la paternidad, y el género para las disparidades de salud?: Un estudio basado en la población de los EEUU (en inglés), examina la calidad de vida relacionada con la salud, obesidad, y comportamientos de salud entre los padres y los que no son padres con y sin discapacidades en los EEUU y explora las diferencias en los resultados de salud para los hombres y las mujeres según el estado de discapacidad y de padres. Los investigadores encontraron que los padres con discapacidades, en comparación con los padres sin discapacidades y los que no son padres con y sin discapacidades, tenían un mayor riesgo de reportar angustia física frecuente, obesidad, tabaquismo, y falta de sueño. Entre las personas con discapacidades, los padres tenían más probabilidades que los que no son padres de informar mala salud o regular, angustia física y mental frecuente, y obesidad. Estas diferencias no fueron evidentes entre madres y las que no son madres con discapacidades. Los hallazgos de este estudio sugieren la necesidad de políticas y programas que abordan las necesidades relacionadas a la salud de padres con discapacidades, incluyendo programas específicos para apoyar a los padres con discapacidades.

Recursos:

Más Investigaciones:

REHABDATA:

PubMed:

Investigaciones Internacionales:

Más información sobre Preguntas y Respuestas

Cada mes, revisamos las búsquedas que aparecen en nuestro blog y a través de las solicitudes de información hechas por nuestros clientes que hablan español y elegimos un tema que llena la necesidad mayor. Cada recurso mencionado anteriormente está asociado con la necesidad de información de este mes. Buscamos varios recursos y fuentes de noticias en español durante todo el mes para traerle estos artículos. Con la excepción de los Proyectos de NIDILRR, De la Colección de NARIC, y Más Investigaciones, todos los enlaces a los artículos y recursos se encuentran en español.

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Answered Questions: Monthly News for the Disability Community for January 2021 on Parents with Disabilities

Answered Questions is a monthly resource for the Spanish language Disability Community that fills an information need. This month’s question is: My partner and I are about to have our first child and I have a disability. What resources and information are available for parents with disabilities? This edition of Answered Questions includes items that address knowledge gaps regarding parents with disabilities; explore the support needs of parents with disabilities and the potential of a supportive intervention; discuss affordable and accessible supports for parents with psychiatric disabilities; and discuss strategies shared by mothers with physical disabilities. More about Answered Questions.

NIDILRR-Funded Projects:

The Parents Empowering Parents: National Research Center for Parents with Disabilities and Their Families addresses the knowledge gaps regarding parents with disabilities and their families through population-based research and analysis of national datasets to inform policy and practice; and the systematic analysis of state legislation and child welfare policies to identify facilitators and barriers to systemic change. Researchers are developing, adapting, testing, and scaling-up interventions for parents with disabilities. The center makes resources, tools, and training and intervention materials available through their accessible online portal. This center also supports the Disabled Parenting Project website where parents and family members may interact, share knowledge, and empower each other. Parents with disabilities may share their experiences with this center, which may be published in the center’s blog.

From the NARIC Collection:

The article, Parents with disabilities: A case study exploration of support needs and the potential of a supportive intervention, highlights the experiences, needs, and strengths of parents with disabilities, and explores the impacts of a parenting support intervention called Parent-Centered-Planning, This intervention was designed to assist individuals with disabilities in planning for their roles as parents and caregivers with an emphasis both on the parent planning for their own families’ futures as well as expanding and harnessing informal as well as formal supports. Researchers analyzed four case studies and found that parents with disabilities often have a limited number of formal and informal supports, that sources of informal support for parents with disabilities often had their own unmet needs, and that the overall support networks of parents with disabilities were fragile. The researchers also found that, even when participating in a parent-centered planning intervention that may not expand their support networks, these parents often do take steps toward meeting their self-identified support goals.

The article, Child protective service disparities and serious mental illnesses: Results form a national survey (in English) from the Temple University Rehabilitation Research and Training Center (RRTC) on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) (in English), discusses a study that determined the prevalence of parenting among individuals with and without serious mental illness (SMI) and examined whether there was a difference in child protective services (CPS) involvement between the two groups. The results of the study showed the prevalence of parenthood was similar between people with (69 percent) and without (71 percent) SMI. However, parents with SMI were approximately 8 times more likely to have experienced a CPS contact and 26 times more likely to have a change in living arrangements compared with parents without SMI. The findings of this study support the need for greater attention to parenting among people with SMI and a better understanding of the factors associated with CPS involvement to reduce the identified disparities between parents with and without a mental illness. A reader-friendly Research In Focus summary of this article is available.

Research In Focus:

According to the National Institute of Mental Health (in English), around 11 million adults in the US have a psychiatric disability. Many adults with psychiatric disabilities are parents and are much more likely to have their parenting abilities questioned by courts or child welfare agencies than their counterparts without psychiatric disabilities. The article, Parents with Psychiatric Disabilities May Benefit from Accessible, Affordable Legal Supports, discusses interviews conducted by researchers at the National Research Center for Parents with Disabilities and Their Families. From these interviews, the researchers found that the parents’ responses focused on three main themes: the understanding of mental health by legal professionals leads to better experiences for parents; assistance of legal professionals is needed beyond the courtroom; and parents have ongoing legal needs.

Women with physical disabilities are about as likely to become mothers as similar-aged women without disabilities and they may need to use adaptations in order to care for their young children. The article, Mothers with Physical Disabilities Share Strategies to Care for Their Young Children, discusses another study from the National Research Center for Parents with Disabilities and Their Families (completed under a previous NIDILRR grant) to identify and describe the adaptive strategies that mothers with physical disabilities used to care for their young children. The researchers found that mothers with physical disabilities may use a variety of strategies to care for their children effectively, from adaptive equipment to assistance from a co-parent. The researchers noted that online and in-person peer support communities may be a vital resource for mothers with disabilities to share information with each other.

Family Nursing:

Parents with learning disabilities pose profound questions to the philosophy and practice of family nursing. Family nursing is a practice where nurses assess the health of the entire family to identify potential health issues and risk factors, develop intervention, and support the health of the entire family. The article, Family nursing and parents who have a learning disability (in English), explores the neglected topic of adults who have learning disabilities and the problems they face when they become parents. The article also examines the issue of the rights of parents with learning disabilities and illustrates that when these rights are not upheld, they increase the vulnerability of these adults and their children. Finally, the article discusses the implications of these issues in the context of children’s nursing practice.

Health Outcomes:

The article, Do disability, parenthood, and gender matter for health disparities?: A US population-based study (in English), examines the health-related quality of life, obesity, and health behaviors between parents and nonparents with and without disabilities in the US and explores the differences in health outcomes separately for men and women by one’s parental and disability status. Researchers found that parents with disabilities, in comparison to parents without disabilities and nonparents with and without disabilities, were at higher risk of reporting frequent physical distress, obesity, smoking, and insufficient sleep. Among those with disabilities, fathers were more likely than nonfathers to report poor or fair health, frequent physical and mental distress, and obesity. These differences were not evident between mothers and nonmothers with disabilities. The findings of this study suggest the need for policies and programs that address the health-related needs of parents with disabilities, including targeted programs to support fathers with disabilities.

Resources:

Further Research:

REHABDATA:

PubMed:

International:

About Answered Questions Each month, we look through the searches on our blog and through the information requests made by our patrons who speak Spanish and pick a topic that fills the largest need. Each resource mentioned above is associated with this month’s information need. We search the various Spanish language news sources and feeds throughout the month to bring you these articles. With the exception of the NIDILRR Projects, From the NARIC Collection, and Further Investigation, all the linked articles and resources are in Spanish – any that are in English will be clearly marked.

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Plainly Speaking – Sharing Research with a Wider Audience Using Plain Language

If you’ve ever reached out to a librarian for information about a subject, you likely walked away with a stack of books, articles, videos, and other resources – enough to last for hours of reading or listening. Some of it might give you a basic understanding, while some might lead you to explore more deeply. However, if you are not a researcher or an industry insider, you might find jargon-filled articles or statistics-packed books a challenge, particularly if you are just learning about the topic.

Getting research out to the public is important, however, and even highly technical research can be shared with nonresearchers. Creating plain language or lay language summaries of research studies offers a way for researchers to share their results with as wide an audience as possible. These summaries may include definitions and descriptions with less jargon or fewer statistics, but the important information still comes across. These may be published as research briefs, articles in magazines, blog posts, or even videos and infographics. It’s a skill to take complex research information and make it understandable to an audience of varied reading levels, but that skill can help get that information into the hands of people who need it.

Here are a few examples of plain- and lay-language summaries from NIDILRR-funded projects published recently:

The Rehabilitation Research and Training Center (RRTC) on Place-Based Solutions for Rural Community Participation, Health, and Employment publishes research briefs and factsheets on its research in these areas.  Explore their collection of research findings, including factsheets, research briefs, and the Geography of Disability series.

The RRTC on Employment of People Who are Blind or Have Low Vision publishes plain language summaries of its research articles. These summaries focus on the practical takeaways to ensure readers can easily find what they need and reduce possible misinterpretations.

The Self-Employment Starts with You project surveyed entrepreneurs with psychiatric disabilities to understand their experiences as business owners and provide information to aspiring entrepreneurs. The study results are summarized in three research briefs.

The research team at the Medical University of South Carolina has conducted many NIDILRR-funded projects on the long-term impacts of spinal cord injury on health, employment, and participation. Explore their collection of research briefs, alerts, videos, and factsheets.

These are just a few examples from the grantee community. In addition, our Research In Focus series selects studies from the grantees and summarizes their exciting findings in lay language for easier reading and sharing.

Are you a researcher interested in learning more about plain language?

  • Visit the Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) and try their Plain Language Summary Tool to guide authors through the process of writing a plain language summary of a systematic review. This page also includes an extensive list of resources for plain language publication development.
  • Explore the Model Systems Knowledge Translation Center (MSKTC) collection of KT resources, particularly the section on Disseminating to Your Audiences, which includes plain language writing, factsheet development, and non-text options like charts, graphs, and comics. This collection also covers accessibility, so publications and products can be viewed, read, or heard by all potential users. These were developed for the Model Systems community but can be generalized to other research areas.
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Hablando con sencillez: Compartiendo la investigación con una audiencia más amplia utilizando un lenguaje sencillo

Si alguna vez se ha comunicado con un bibliotecario para obtener información sobre un tema, es probable que se haya marchado con una pila de libros, artículos, vídeos, y otros recursos – lo suficiente para que le duren horas de lectura o de escuchar. Algunos de ellos pueden brindarle una comprensión básica, mientras que otros pueden llevarlo a explorar más profundamente. Idealmente, su bibliotecario eligió material que pudiera leer y comprender sin demasiada dificultad. Si no es un investigador o un conocedor de la industria, es posible que los artículos llenos de jerga o libros llenos de estadísticas sean un desafío, particularmente si recién está aprendiendo sobre el tema.

Sin embargo, hacer llegar la investigación al público es importante, e incluso la investigación altamente técnica se puede compartir con personas que no son investigadores. Los investigadores pueden encontrar que crear resúmenes de sus estudios en lenguaje sencillo o no profesional ofrece una manera de compartir sus resultados con una audiencia lo más amplia posible. Estos resúmenes pueden incluir definiciones y descripciones con menos jerga o menos estadísticas, pero la información importante sigue apareciendo. Estos pueden ser publicados como resúmenes de investigación, artículos en revistas, publicaciones de blog, o incluso vídeos e infografías. Es una habilidad tomar información de investigación compleja y hacerla comprensible para una audiencia de diversos niveles de lectura, pero esa habilidad puede ayudar a que esa información llegue a las manos de las personas que la necesitan.

A continuación, se muestran algunos ejemplos de resúmenes en lenguaje sencillo y en lenguaje común de proyectos financiados por NIDILRR publicados recientemente:

El Centro de Investigación de Rehabilitación y Capacitación (RRTC, por sus siglas en inglés) sobre las Soluciones Basadas-en-el-Lugar para la Participación Comunitaria, Salud, y Empleo Rural publica resúmenes de investigación y hojas informativas sobre sus investigaciones en estas áreas. Explore su colección de hallazgos de investigación, incluyendo hojas informativas, resúmenes de investigación, y la serie Geografía en Discapacidad (en inglés).

El RRTC sobre el Empleo de Personas Ciegas o con Baja Visión pública resúmenes en lenguaje sencillo de sus artículos de investigación (en inglés). Estos resúmenes se centran en las conclusiones prácticas para garantizar que los lectores puedan encontrar fácilmente lo que necesitan y reducir posibles malas interpretaciones.

El proyecto Autoempleo Comienza Contigo llevo a cabo una encuesta con empresarios con discapacidades psiquiátricas para comprender sus experiencias como dueños de empresas y brindar información a aspirantes empresarios. Los resultados del estudio se resumen en tres informes de investigación (en inglés).

El equipo de investigación de la Universidad Médica de Carolina del Sur ha llevado a cabo muchos proyectos financiados por NIDILRR sobre los impactos a largo plazo de la lesión de la médula espinal en la salud, el empleo, y la participación. Explore su colección de informes de investigación, alertas, vídeos, y hojas informativas (en inglés).

Estos son solo algunos ejemplos de la comunidad de concesionarios. Además, nuestra serie Enfoque De Investigación selecciona estudios de los concesionarios y resume sus emocionantes hallazgos en lenguaje común para facilitar la lectura y el intercambio.

¿Es usted un investigador interesado en aprender más sobre el lenguaje sencillo?

  • Visite el Centro sobre la Traducción de Conocimientos para la Investigación de Discapacidad y Rehabilitación (KTDRR, por sus siglas en inglés) y trate su Instrumento de Resumen en Lenguaje Sencillo (en inglés) para guiar a los autores a través del proceso de redacción de un resumen en lenguaje sencillo de un análisis sistemático. Esta página incluye una lista extensa de recursos para el desarrollo de una publicación en lenguaje sencillo.
  • Explore la colección de recursos de KT (en inglés) del Centro de Traducción de Conocimientos de los Sistemas Modelo (MSKTC, por sus siglas en inglés), particularmente la sección sobre la Difusión a sus Audiencias (en inglés) que incluye la redacción en lenguaje sencillo, desarrollo de hojas informativas, y opciones que no son de texto, como cuadros, gráficos, y cómics. Esta colección también cubre la accesibilidad, por lo que las publicaciones y productos pueden ser vistos, leídos, o escuchados por todos los usuarios potenciales. Estos fueron desarrollados por la comunidad de Sistemas Modelo, pero se pueden generalizar a otras áreas de investigación.
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ADELA: Providing Information and Support to People with ALS, Their Families, and Service Providers

The Spanish Association of Amyotrophic Lateral Sclerosis (ADELA, according to its Spanish acronym) (in Spanish) is a non-profit organization that was founded in 1990 and which extends its activities to Spain and all of its territories. The principal mission of ADELA is to improve the quality of life of people affected by amyotrophic lateral sclerosis (ALS) or other motor-neuron diseases. ADELA offers services (in Spanish) such as physical therapy, speech therapy, talk therapy and other psychological modalities, caregiver support, and specific workshops. The Association provides information (in Spanish), guidance, advice on improving the quality of life or people with ALS or other motor-neuron diseases (in Spanish), and support to people with ALS and their families. ADELA also raises awareness in society about the effects of ALS and advocates for research on ALS and solutions for people living with ALS or other motor-neuron diseases. ADELA provides technical assistance (in Spanish), information on public assistance (in Spanish), and training to people with ALS (in Spanish), their families, and the service providers that work with them. The Association also organizes workshops, conferences, and all-day meetings on the latest research (in Spanish) related to ALS and other motor-neuron diseases. Finally, ADELA provides a quarterly magazine (in Spanish), videos (in Spanish), and other publications and guides (in Spanish).

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ADELA: Proporcionando información y apoyo a las personas con ELA, sus familias, y proveedores de servicio

La Asociación Española de ELA (ADELA) es una organización sin fines de lucro que fue fundada en 1990 y que extiende sus actividades a España y todos sus territorios. La misión de ADELA es mejorar la calidad de vida de personas afectadas por la esclerosis lateral amiotrófica (ELA) u otras enfermedades de las motoneuronas. ADELA ofrece servicios como fisioterapia, logopedia, psicoterapia, y otras modalidades psicológicas, apoyo al proveedor de atención, y talleres específicos. La asociación brinda información, orientación, y consejos para mejorar la calidad de vida de las personas con ELA u otras enfermedades de las motoneuronas, y apoyo a las personas con ELA y sus familias. ADELA también crea conciencia en la sociedad sobre los efectos de ELA y aboga por la investigación sobre la ELA y las soluciones para las personas con ELA u otras enfermedades de las motoneuronas. ADELA brinda asistencia técnica, información sobre la asistencia pública, y capacitación a las personas con ELA, sus familias, y los proveedores de servicios que trabajan con ellos. La asociación también organiza talleres, conferencias, y jornadas sobre las últimas investigaciones relacionadas con ELA y otras enfermedades de las motoneuronas. Finalmente, ADELA proporciona una revista trimestral, vídeos, y otras publicaciones y guías.

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A Fresh Start for 2021

Happy New Year and welcome to 2021! 2020 was a very difficult year in many ways. People around the world dealt with a pandemic, economic hardship, work and school lives turned upside-down, and much more. On top of all of that, many of us dealt with personal struggles with physical and mental health, challenges at work or in school, and more. Now we find ourselves in the first full week of 2021 and hoping for a fresh start or a restart in some cases.

We here at NARIC are right there with you! We’re not making resolutions this year; we are committing to take care of ourselves and each other. That might mean taking a good look at our workspace and schedule to make it more ergonomic, practical, and healthy. It might mean taking the time to learn something new we can use on the job, at home, or in the community. Here are a few resources from the NIDILRR grantee community and elsewhere which may help you start/restart 2021:

These are just a few examples of resources you can use to hit Refresh on 2021. Please reach out to our information specialists if we can help you find other tools, tips, or classes. We hope you and your community are staying safe, staying healthy, and staying engaged!

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Un nuevo comienzo para 2021

¡Feliz año nuevo y bienvenido al 2021! El 2020 fue un año muy difícil en muchos sentidos. Personas alrededor de todo mundo se enfrentaron a una pandemia, dificultades económicas, las vidas laborales y escolares vueltas al revés, y mucho más. Además de todo eso, muchos de nosotros lidiamos con luchas personales con la salud física y mental, desafíos en el trabajo o en la escuela, y más. Ahora nos encontramos en la primera semana de 2021 y esperamos un nuevo comienzo o un reinicio en algunos casos. ¡Aquí en NARIC estamos ahí con usted! No estamos haciendo resoluciones este año; nos comprometemos a cuidarnos a nosotros mismos y a los demás. Eso podría significar echar un buen vistazo a nuestro espacio de trabajo y horario para hacerlo más ergonómico, práctico, y saludable. Podría significar tomarse el tiempo para aprender algo nuevo que podamos usar en el trabajo, en casa, o en la comunidad. Aquí hay algunos recursos de la comunidad de concesionarios de NIDILRR y de otros lugares que pueden ayudarle a comenzar/reiniciar 2021:

Estos son solo algunos ejemplos de recursos que usted puede utilizar para re-actualizar en 2021. ¡Esperamos que usted y su comunidad se mantengan seguros, saludables, y comprometidos!

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