Mental Health Month Focuses on Early Screening and Intervention

May is Mental Health Month, sponsored by Mental Health America (MHA)! For more than a century, MHA has focused on community-level efforts to promotion the mental well-being of Americans. This year’s campaign is B4Stage4, encouraging people to be screened early to identify mental health or psychiatric disabilities such as depression, post-traumatic stress disorder, anxiety, and other conditions. Early identification and intervention can mean staying in school or keeping a job, maintaining a stable family and home life, even saving a life. This infographic from MHA breaks down the early warning signs, the stages of living with mental health conditions, and the potential costs of waiting too long to get help.

The NIDILRR community offers excellent tools, resources, and research on mental health and psychiatric disabilities. Here are a few items you can use in your Mental Health Month observances:

These are just a few examples of research and resources mental health, both as a disability and as a secondary condition. Our collection includes thousands of reports, journal articles, books, and multimedia selections on a range of topics relating to mental health. Try these links to explore more:

These and more are available from our collection. Learn more about advanced search techniques or get in touch with an information specialist to craft your search strategy or order any documents you find in your explorations!

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Disability News Weekly Roundup – Monday, May 18 – Friday, May 22

Aquí puede leer este artículo en español.

Education:
Holding schools responsible for addressing childhood trauma (The Atlantic)
A group of students and teachers in Southern California recently filed a class-action lawsuit in federal court against the Compton Unified School District. Labeled by backers to be the first of its kind, this case alleges that the Compton school district has failed to sufficiently address the influence that childhood trauma can have on learning. The case marks the first time that a federal law will be used to determine whether “complex trauma” can be considered a disability, in which case schools would be obligated to offer mental-health services. Currently, these services are not always in place.

Policy:
New disability liaison on board at White House (Disability Scoop)
Maria Town joined President Obama’s staff this week as an associate director in the White House’s Office of Public Engagement. In the post, she will focus on incorporating the needs of people with disabilities in administration activities. Town, who has cerebral palsy, is a full-time, permanent hire. Before joining the president’s staff, Town worked as an adviser in the Labor Department’s Office of Disability Employment Policy, where she focused on improving employment among youth and young adults with disabilities.

Rehabilitation:
Electrical stimulation proven to accelerate wound healing (Gizmag)
A University of Manchester study of skin wound healing in 40 human volunteers has found that electrical stimulation significantly speeds up the healing process. Study participants were given two identical wounds on each arm. The wounds on one arm were left to heal normally while those on the other arm were treated with tiny electrical shocks on four occasions over a two-week period. The electrical pulses stimulated a process called angiogenesis, which results in the formation of new blood vessels and increased blood flow to the damaged area. Wounds treated with electrical stimulation had a significantly smaller surface area, volume, diameter, and depth than those left to heal normally – they healed faster than normal, essentially.

Injured sea turtle gets 3D printed jaw (BBC News)
A 3D-printed beak has been fitted to a sea turtle injured by a collision with a boat’s propeller. The beak, made of medical-grade titanium, replaces the loggerhead turtle’s jaws, half of which were sheared off in the accident. Detailed scans of the injured turtle’s head were used to generate the design of the prosthetic beak. The turtle is currently convalescing at a recovery center to ensure that it has adapted to its metal jaw. A video from 3D Printing Industry shows the development of the prosthetic jaw.

Prosthetic limbs, controlled by thought (The New York Times)
Engineers at the Johns Hopkins University Applied Physics Lab have developed a next-generation prosthetic: a robotic arm that has 26 joints, can lift up to 45 pounds, and is controlled with a person’s mind just like a regular arm. The limb is modular, which means it can be broken off or built up to accommodate people with different needs, from a hand amputee to someone missing an entire arm. People with quadriplegia or stroke survivors, who have lost the ability to move all or part of their bodies, can also use it as a surrogate arm. The article includes a video showing a man using the robotic arm following surgery to remap the remaining nerves from his both his arms lost in an accident, allowing brain signals to be sent to the prosthetic.

Calming chair for kids on the spectrum may be headed to market (Disability Scoop)
About a year and a half ago, students in a Kansas City high school engineering program developed the Sensory Lounger, a chair that provides a soothing, full-body hug for children with autism spectrum disorder (ASD). Now, a local businessman and driving force behind the Sensory Lounger project has formed a business, the Sensory Chair Co., for the purpose of getting the chair to market. This summer, he will offer a number of paid internships to members of the high school program in an effort to produce enough chairs to begin testing for safety and effectiveness. There are plans, too, to hire several people with ASD to aid in the development process.

Research:
Stuttering linked to rhythm perception deficiency (Science Daily)
Stuttering may be more than a speech problem. Researchers have found that children who stutter have difficulty perceiving a beat in music-like rhythms, which could account for their halting speech patterns. According to a co-author of the study, which appears online in the journal Brain & Language, “This is the first study that shows [stuttering] is related to a rhythm perception deficit – in other words, the ability to perceive and keep a beat. That’s important because it identifies potential interventions which might focus on improving beat perception in children who stutter, which then might translate to improved fluency in speech.”

Blood test could detect traumatic brain injury (IFL Science!)
Current diagnosis and monitoring of traumatic brain injury (TBI) relies on CT and MRI scans, both of which can be costly and time-consuming. Researchers at the University of Pittsburgh Medical Center, however, claim to have shown that a blood test can accurately identify if a patient has sustained a TBI, and to what severity. By measuring the amount of a specific blood protein released into the bloodstream after injury, called glial fibrillary acidic protein (GFAP), the team were able to reduce the number of unnecessary CT scans by up to 30 percent.

Resumen Semanal de las Noticias sobre la Discapacidad: Lunes, 18 de Mayo – Viernes, 22 de Mayo

Educación:
Escuelas se sostiene responsables para abordar el trauma infantil (The Atlantic)
Un grupo de estudiantes y profesores en el sur de California presentó recientemente una demanda colectiva en la corte federal en contra del Distrito Escolar Unificado de Compton. Etiquetada por partidarios para ser el primer de su tipo, su caso alega que el distrito escolar de Compton no ha abordado suficientemente la influencia que el trauma infantil puede tener en el aprendizaje. El caso marca la primera vez que una ley federal será usada para determinar si “trauma complejo” puede ser considerado una discapacidad, en el que las escuelas de caso estarían obligados a ofrecer los servicios de salud mental. En la actualidad, estos servicios no siempre están en su lugar.

Política:
Nuevo coordinador de discapacidad a bordo en la Casa Blanca (Disability Scoop)
Maria Town se unió el personal del Presidente Obama esta semana como director en la Oficina de Participación Pública de la Casa Blanca. En el puesto, ella se centrará en incorporar las necesidades de personas con discapacidades en administrar actividades. Town, que tiene parálisis cerebral, se ha contratado para su puesto permanente de tiempo completo. Antes de unirse al personal del presidente, Town trabajó como un asesor en la Oficina de Política de Empleo de Personas con Discapacidad del Departamento de Trabajo, donde se centró en mejorar el empleo entre la juventud y los adultos jóvenes con discapacidades.

Rehabilitación:
La estimulación eléctrica se ha probado a acelerar la cicatrización de heridas (Gizmag)
Un estudio de la Universidad de Manchester de la cicatrización de heridas en 40 voluntarios humanos ha encontrado que la estimulación eléctrica acelera significativamente el proceso de curación. Los participantes del estudio recibieron dos heridas idénticas en cada brazo. Las heridas en un brazo se dejaron cicatrizar normalmente mientras que las heridas del otro brazo fueron tratadas con pequeñas descargas eléctricas en cuatro ocasiones durante un periodo de dos semanas. Los impulsos eléctricos estimularon el proceso llamado angiogénesis, que resulta en la formación de nuevos vasos sanguíneos y el aumento de flujo sanguíneo a la zona dañadas. Las heridas tratadas con la estimulación eléctrica tuvieron una significativamente menor área de superficie, volumen, diámetro, y profundidad que las que se dejaron a curarse normalmente – sanaron más rápido de lo normal, esencialmente.

La herida tortuga marina recibe una mandíbula de impreso 3D (BBC News)
Un pico de impreso en 3D ha sido equipada a una tortuga marina lesionada por una colisión con la hélice de un barco. El pico, hecho de titanio de grado médico, reemplaza las mandíbulas de la tortuga, la mitad de los cuales fueron esquiladas durante el accidente. Las exploraciones detalladas de la cabeza de la tortuga herida fueron utilizadas para general el diseño de la prótesis de pico. La tortuga está recuperando actualmente en un centro de recuperación para asegurar que se ha adaptado a la mandíbula de metal. Un vídeo de 3D Printing Industry muestra el desarrollo de la prótesis de la mandíbula.

Brazos y piernas artificiales, controlados por el pensamiento (The New York Times)
Los ingenieros del Laboratorio de Física Aplicada de la Universidad de Johns Hopkins han desarrollado una prótesis de próxima generación: un brazo robótico que tiene 26 articulaciones, puede levantar hasta 45 libras, y es controlado con la mente de una persona al igual que un brazo normal. La extremidad es modular, que quiere decir que puede ser roto o construido para acomodarlo a personas con necesidades diferentes, desde una persona con amputación de la mano hasta alguien que falta todo un brazo. Las personas con tetraplejia o los sobrevivientes de un derrame cerebral, que han perdido la habilidad de mover todo o parte de sus cuerpos, también pueden usarlo como un brazo sustituto. El artículo incluye un vídeo que muestra a un hombre usando el brazo robótico después de una cirugía para volver a asignar a los nervios restantes de sus dos brazos perdidos en un accidente, permitiendo que las señales cerebrales para ser enviadas a la prótesis.

Silla calmante para niños en el espectro pueden ser dirigidos al mercado (Disability Scoop)
Alrededor de un año y medio atrás, los estudiantes del programa de ingeniería de una secundaria de la ciudad de Kansas desarrollaron la Tumbona Sensorial, una silla que proporciona un relajante abrazo de todo el cuerpo para niños con un trastorno del espectro autista (TEA). Ahora, un empresario local y la fuerza impulsora detrás del proyecto de la Tumbona Sensorial á formado una empresa, la Sensory Chair, Co., con el propósito de conseguir la silla al mercado. Este verano, él va a ofrecer un número de prácticas renumeradas a los miembros del programa de la secundaria en un esfuerzo de producir suficientes sillas para empezar a probar la seguridad y eficacia. Hay planes, también, para contratar a varias personas con TEA para ayudar en el proceso de desarrollo.

Investigación:
La tartamudez es ligada con la deficiencia en la percepción del ritmo (Science Daily)
La tartamudez puede ser más que un problema del habla. Los investigadores han encontrado que los niños que tartamudean tienen una dificultad en la percepción de un latido en los ritmos similares como la música, que podría ser responsable de sus patrones de voz vacilante. De acuerdo con uno de los autores del estudio, que aparece en línea en la revista Cerebro & Lenguaje, “Este es el primero estudio que muestra [tartamudez] está relacionada a un déficit en la percepción del ritmo – es decir, la habilidad de percibir y mantener un latido. Eso es importante porque identifica las intervenciones potenciales que podrían enfocarse en mejorar la percepción del ritmo en los niños que tartamudean, que a su vez podría traducirse en la mejora de la fluidez en el habla.”

Examen de sangre podría detectar la lesión cerebral traumática (IFL Science!)
El diagnóstico y el seguimiento actual de la lesión cerebral traumática (LCT se basa en CT y MRI, los cuales pueden ser costosos y consumen mucho tiempo. Los investigadores en el Centro Médico de la Universidad de Pittsburgh, sin embargo, afirman que han demostrado que una prueba de sangre puede identificar con precisión si un paciente ha sufrido una lesión cerebral traumática, y en qué intensidad. Mediante la medición de la cantidad de una específica proteína de la sangre liberada en el torrente sanguíneo después de la lesión, llamada proteína ácida glial fibrilar (GFAP por sus siglas en inglés), el equipo fue capaz de reducir el número de tomografías computarizadas innecesarias hasta un 30 por ciento.

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Let’s Get Physical!

It’s National Physical Fitness and Sports Month, led by the President’s Council on Fitness, Sports, and Nutrition! The observances this month focus on the importance of an active and healthy lifestyle for everyone, including people with disabilities. This can range from adaptive sports to accessible gyms to health promotion campaigns targeted to underserved communities. Did you know the NIDILRR community has many excellent tools and resources to support active, healthy lives for people with disabilities?

These offer just a small sample of the wealth of research on fitness, exercise, health and wellness promotion, and nutrition conducted by NIDILRR-funded projects over the years. Dive deeper into our collection through this advanced search in REHABDATA to find journal articles, books, and reports from these projects and other NIDILRR projects, as well as other sources, most of which can be ordered through our document delivery service.

The warmer weather means more people are out and about, but remember that maintaining a healthy lifestyle should be a year-round activity. Check out the Inclusive Fitness Coalition for other ways you can support health and wellness for every level of ability! We hope these resources help you and your family Get Physical!

*Apologies to Olivia Newton-John for using her iconic song title, but it works so well!

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Disability News Weekly Roundup – Monday, May 11 – Friday, May 15

Human Interest:
Audree Norton, who paved way for deaf actors, dies at 88 (The New York Times)
Audree Norton, a Deaf actress whose fight to be cast on a television show in the late 1970s greatly helped the careers of Deaf actors who followed her, died on April 22 at the age of 88. In the late 1970, she and her husband, who is also Deaf, auditioned for the roles of the mother and father in “Mom and Dad Can’t Hear Me,” an ABC Afterschool Special about a hearing teenager with Deaf parents. Although they won the roles, they were not hired because the director was afraid to use Deaf actors. The Nortons responded by filing a complaint with the Screen Actors Guild. This action raised public awareness of the work of Deaf actors and demonstrably helped pave the way for the generation that followed, including Marlee Matlin, who won an Oscar in 1986 for “Children of a Lesser God.”

Accessibility:
Easyjet to fit planes with wheelchair accessible toilets (Reduced Mobility Rights)
Britain’s low-cost airline Easyjet has announced it is to fit all its new A320 planes with a Space-Flex 2 lavatory, a wheelchair-accessible toilet. All new Airbus A320s delivered after May 2016 will feature the accessible lavatory. Airbus is the only aircraft manufacturer in the world to offer this option on single-aisle planes. The airline also announced plans to retrofit its existing 76 A320s with the Space-Flex 2 lavatory. The process should be completed by 2018.

Education:
From ‘lost’ to possibilities: Colleges helping students with autism (NBC News)
Autism/Asperger’s Initiative (AIM) at Mercyhurst University in Erie, PA is a pioneering program designed to help students overcome challenges students with an autism spectrum disorder (ASD) face in the academic environment. In addition to academic instruction, the four-year program helps students develop executive functioning and practical life skills and provides them with emotional and social support. Mercyhurst is working with other colleges to create similar programs. Some participating colleges include the Rochester Institute of Technology, Rutgers University, University of Tennessee (Chattanooga,) University of West Florida, UCLA, the University of Connecticut, and Marshall University in West Virginia.

Policy:
In first, state to ban subminimum wage (Disability Scoop)
With legislation signed last week, New Hampshire is set to become the first state in the nation to make it illegal for people with disabilities to be paid less than minimum wage. Previously, New Hampshire law allowed employers to obtain permission to pay those with physical or mental impairments less than minimum wage. In 2012 the National Council on Disability recommended to President Barack Obama that subminimum wage be phased out, and a federal law passed last year instituted new limits on who is eligible to enter employment situations paying less than minimum wage.

Rehabilitation:
Novel computer intelligence system for acute stroke (Science Daily)
Researchers at the Hong Kong Polytechnic University have developed a novel computer-aided detection system for acute stroke using computer intelligence technology. The system is able to detect if the patient had ischemic stroke or haemorrhagic stroke. The detection accuracy is 90 percent, which is as high as that conducted by specialists, but at a much reduced time from 10 to 15 minutes to 3 minutes. The new system serves as a second opinion for frontline medical doctors, enabling timely and appropriate treatment for stroke patients.

Pressure sensing stocking to help save diabetic feet (MedGadget)
Researchers at the Fraunhofer Institute for Silicate Research and Institute for Integrated Circuits in Germany have created a prototype pressure monitoring stocking for patients with diabetic neuropathy, who are unable to sense pressure on their feet. The stocking can let the wearer know when to change positions, take a rest, or keep on walking. It has 40 elastic sensors that combine their data to create a map of the pressure forces applied to the feet. The sensors are made of silicone film with flexible electrodes making the electric connection. A control unit is attached to the stocking.

Research:
Cause of regression in individuals with Down syndrome identified (Science Daily)
Down syndrome can be complicated by significant deterioration in movement, speech, and functioning in some adolescents and young adults. Physicians have attributed this regression to depression or early-onset Alzheimer’s disease, and it has not responded to treatment. Now, a researcher at the University of Missouri has found that catatonia, a treatable disorder, may cause regression in patients with Down syndrome. Patients with regressive Down syndrome who were treated for catatonia showed improvement, the researcher found.

Technology:
Smart cane with facial recognition and GPS capabilities (MedGadget)
The XploR cane developed by students at Britain’s Birmingham City University has smartphone electronics, including a camera, built in. The device looks ahead and uses computer recognition algorithms to identify people the blind user personally knows. A memory card holds photos of family members and friends, and the cane automatically compares people it sees against those files. The device also has GPS capability, so that combining it with a wireless Bluetooth headset can provide navigational guidance.

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More for May: Healthy Vision and Better Hearing and Speech

In the long list of May observances, you’ll find both Healthy Vision Month, from the National Eye Institute, and Better Hearing and Speech Month from the American Speech-Language-Hearing Association (ASHA). We continue with our series highlighting resources you can use right now from the NIDILRR grantee community to help you focus on healthy vision and better speech and hearing for yourself, your loved ones, and/or the people you support.

Healthy Vision

The Rehabilitation Research and Training Center on Employment Outcomes for People who are Blind or Visually Impaired has a growing library of free, self-paced online courses on blindness and low vision, including introductions to many adult and childhood eye diseases.
http://ntac.blind.msstate.edu/courses/

Better Hearing

The 2008-2013 Rehabilitation Engineering Research Center on Hearing Enhancements at Gallaudet University published a collection of articles on hearing loss by Dr. Marc Ross
http://hearingresearch.org/ross/index.php as well as an article in Hearing Loss Magazine called Can you hear me now? Maximizing your hearing on the phone at
http://www.nxtbook.com/ygsreprints/HLAA/g33893_hlaa_mayjun2013/#/28

Better Speech

The Communication Matrix is a free assessment tool developed under a field initiated grant that can be used by professionals or parents to pinpoint exactly how an individual is communicating and to provide a framework for determining logical communication goals. An easy to use assessment instrument designed for individuals of all ages who function at the earliest stages of communication and who use any form of communication.
https://www.communicationmatrix.org/

For Providers

The Rehabilitation Research and Training Center on Independent Living offers a quick guide for medical practitioners (including vision and hearing care centers) to make their offices more accessible to people with mobility and sensory disabilities, including tips on disability etiquette.
http://www.rtcil.org/~rtcil/documents/Healthcare/
Disability%20resources%20for%20hc%20providers.pdf

Explore on Your Own

These are just a few examples of the work of the NIDILRR community with regard to speech, hearing, and vision. Want to dive deeper? These links will help you explore current and past research projects, as well as articles indexed in our collection:

These are just a few examples of deep searches you can run in REHABDATA and the NIDILRR Program Database. Check out this article on exploring our databases for more search tips.

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USDOT Offers Free Public Workshop on ATTRI 5/18-19

As a NARIC patron and reader of the NARIC Spotlight, you may be interested in the following event:

The U.S. Department of Transportation (USDOT) To Offer a Free Public Workshop on Applications for the Accessible Transportation Technologies Research Initiative (ATTRI)

The U.S. Department of Transportation will host a free public workshop to inform and engage stakeholders on the progress, applications, and next steps of the USDOT’s Accessible Transportation Technologies Research Initiative (ATTRI). The public workshop is scheduled for May 18-19, 2015, from approximately 8:00 am to 5:30 pm in Washington, DC.

Summary

Project Description

The USDOT’s Accessible Transportation Technologies Research Initiative (ATTRI) conducts research to improve the mobility of travelers with disabilities through the use of intelligent transportation systems (ITS) and other advanced technologies. ATTRI is a USDOT joint program and research initiative led by the Federal Highway Administration (FHWA) and Federal Transit Administration (FTA), with support from the ITS Joint Program Office, National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) and other federal partners.

Recently the USDOT completed a Request for Information (RFI) and comments on accessible transportation technology applications that will be pursued through ATTRI to assist in the personal mobility of three targeted populations: (1) people with disabilities, (2) older adults, and (3) veterans, and then transfer these benefits to all travelers. ATTRI will develop technological solutions to remove barriers associated with four functional disabilities: (1) visual, (2) hearing, (3) cognitive and (4) mobility. The USDOT anticipates procurement actions for the development of one or more applications in 2016. For more information, please visit: http://www.its.dot.gov/attri

Purpose of Public Workshop

This workshop will inform and engage stakeholders on recent progress and future activities of ATTRI. Specifically, this workshop will assist the program in identifying specific technology applications to be further developed through future activities of ATTRI.

This workshop will identify candidate technology solutions to address the travel needs of people with disabilities, older adults, and veterans with disabilities. The USDOT is looking for your feedback and help in identifying new technology solutions addressing the mobility challenges of all travelers. Your participation in this workshop will contribute to the selection of applications to be developed in future ATTRI activities. This workshop is being sponsored by the Intelligent Transportation Systems Joint Program Office (ITS JPO).

The workshop will take place at:

Holiday Inn Washington-Capitol

550 C Street S.W.

Washington, DC 20024,

(202) 479-4000

To register, visit: http://www.itsa.org/attriworkshop

For further information contact:

Carlos Alban

Transportation Program Specialist

Intelligent Transportation Society of America

1100 New Jersey Ave., SE, Suite #850

Washington, DC 20003

Phone: 202-721-4223

Email: calban@itsa.org

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Disability News Weekly Roundup – Monday, May 4 – Friday, May 8

Aquí puede leer este artículo en español.

Human Interest:
Since recovery, TV meteorologist helps others forecast, prevent strokes (American Heart Association News)
Bri Winkler, a TV meteorologist and news reporter in Los Angeles, is an ambassador with the American Stroke Association and a member of the Western States Stroke Task Force. In this capacity, she is helping support efforts to raise awareness and sharing her experience of having a stroke at the age of 24. She has been featured on “Good Morning America,” local radio stations, and her station, KABC/ABC7. Following her story on KABC, the station set up a phone bank staffed with local neurologists to answer viewers’ questions.

Policy:
Social Security shift to online services prompts concern (Disability Scoop)
A push to expand online services at the Social Security Administration is meeting resistance from a federal union that represents thousands of agency employees and groups that fear the effort will minimize face-to-face help for seniors and people with disabilities. Included in a planning document released by the agency last week were recommendations to increase the use of Internet-based self-service sites and to rely more heavily on video conferencing instead of in-person hearings to determine whether a claimant is eligible for benefits. About 28,000 employees work in the agency’s roughly 1,250 field offices, and nearly 180,000 people visit them every day. The Senate Aging Committee issued a scathing report last year on Social Security’s procedure for closing field offices. Congress ultimately approved requirements that make it more difficult for the agency to close an office.

Rehabilitation:
The babies saved by 3-D printing are now healthy, adorable toddlers (The Washington Post)
Three years ago, a newborn named Kaiba underwent a radical new procedure: To keep his airway from collapsing due to a rare condition called tracheobronchomalacia, doctors implanted a 3D-printed splint into the boy. Now, his doctors report that Kaiba, and two other boys who have had the same procedure since, are doing very well. Kaiba’s splint has begun to dissolve into his body as planned, and he is doing just fine without it. That means the therapy lasted long enough for his airways to mature as normal. The article includes a video in which the doctors discuss the procedure.

As we age, keys to remembering where the keys are (The New York Times)
As we age, preventing cognitive decline that can interfere with quality of life is a far better option than trying to reverse it. The Institute of Medicine has highlighted several actions everyone can take to maximize the chances of remaining cognitively sound well into the twilight years. First and foremost, be physically active. Second, prevent or control cardiovascular risk factors, including high blood pressure, smoking, obesity, and diabetes. Also, drink alcohol moderately, get adequate sleep, and engage in cognitively and intellectually stimulating activities.

More aging Americans using canes, walkers (healthfinder.gov)
Canes, walkers, and other mobility aids are used by about one-quarter of American seniors, a new study reveals. Use of canes and other mobility devices soared almost 50 percent over a recent eight-year period, according to interviews of more than 7,600 Medicare beneficiaries. In addition, nearly 10 percent of seniors use more than one mobility device. Experts attribute this increase to several factors, from an aging population to recognition of the need to keep moving in old age. Overall, women were found to be 20 to 30 percent more likely to use a mobility device than men. Device use was also generally higher among African Americans, Hispanics, and those who were obese or had a history of pain, balance, or coordination problems.

‘Leg bank’ hope for changing amputees’ lives (Science Daily)
Researchers from Scotland’s University of Strathclyde and members of Dutch-based social enterprise organization ProPortion are establishing a service in Colombia offering high-quality prostheses to low-income people who have lost limbs, often through injuries from landmines. A team from Strathclyde’s Department of Biomedical Engineering has developed innovative technology, known as Majicast, to manufacture lower-limb prosthetic sockets which fit prostheses securely to patients’ residual limbs. ProPortion has devised a potential business model which would encompass training for people who are currently operating at prosthetic technician level, enhancing the quality of their product and enabling the service to become self-sustaining. If successful, the venture could be adapted for use in other countries.

Research:
Majority of older adults willing to be screened by telephone for dementia (Science Daily)
Nearly two-thirds of older adults were willing to undergo telephone screening for dementia, according to a new study from the Indiana University Center for Aging Research. Willingness to be screened by phone did not differ by sex, age, or race. The researchers found that the two most significant predictors of willingness to be screened by phone were belief in benefits of early knowledge of cognitive decline and having a friend or relative with Alzheimer’s disease. Screening for dementia is designed to detect problems requiring further diagnostic assessment.

What if there is no autism epidemic? (The Daily Beast)
The Centers of Disease Control and Prevention’s March 2014 report showing a 30 percent rise in autism spectrum disorders (ASDs) over the span of a few years raised widespread concern over the cause of the increase. A new Swedish study published in the BMJ suggests that the cause may have less to do with the actual number of cases of ASD and more with the nature of how we determine them. Outside factors, from diagnosis to socioeconomics, may have inflated reports that suggest rates of autism are spiking.

Resumen Semanal de las Noticias sobre la Discapacidad: Lunes, 4 de Mayo – Viernes, 8 de Mayo

Interés Humano:
Desde la recuperación, meteorólogo de TV ayuda a otros a pronosticar, prevenir los accidentes cerebrovasculares (American Heart Association News)
Bri Winkler, un reportero meteorólogo de televisión y prensa en Los Ángeles, es un embajador con la Asociación Estadounidense de Accidente Cerebrovascular y un miembro del Grupo de Tareas de los Estados del Oeste sobre el Accidente Cerebrovascular. En esta capacidad, ella está ayudando a apoyar los esfuerzos para dar a conocer y compartir su experiencia de tener un derrame cerebral a la edad de 24 años. Ella ha aparecido en “Good Morning America”, las estaciones locales de radio, y su estación, KABC/ABC7. Después de su historia en KABC, la estación estableció un banco de teléfonos con neurológicos locales para responder a las preguntas de los espectadores.

Política:
El cambio del Seguro Social a los servicios en línea le pide preocupación (Disability Scoop)
Un impulso para ampliar los servicios en línea de la Administración del Seguro Social se reúne a la resistencia de una unión federal que representa a miles de empleados de la agencia y grupos que temen el esfuerzo minimizará la ayuda cara-a-cara para las personas mayores y personas con discapacidades. Incluido en un documento de planificación publicado por la agencia la semana pasada fueron recomendaciones para aumentar el uso de sitios de auto-servicio basados en Internet y para depender más en la videoconferencia en lugar de audiencias en persona para determinar si un solicitante es elegible para los beneficios. Acerca de 28,000 empleados trabajan en aproximadamente 1,250 oficinas de campo de la agencia, y casi 180,000 personas los visitan cada día. El Comité sobre el Envejecimiento del Senado emitió un duro informe el año pasado sobre el procedimiento del Seguro Social para cerrar las oficinas del campo. El Congreso aprobó en última los requisitos que hacen que sea más difícil para que la agencia cierre una oficina.

Rehabilitación:
Los bebés salvados por la impresión 3-D ahora son saludables niños adorables (The Washington Post)
Hace tres años, un recién nacido llamado Kaiba se sometió a un nuevo procedimiento radical: Para mantener sus vías respiratorias y para que no se colapsen debido a una rara enfermedad llamada traqueobroncomalacia, los médicos implantaron un férula de impresa 3D en el niño. Ahora, sus doctores informan que Kaiba, y otros dos niños que han experimentado el mismo procedimiento desde la de Kaiba, están haciendo muy bien. El férula de Kaiba ha comenzado a disolverse en su cuerpo como estaba previsto, y él está haciendo muy bien si él. Eso significa que la terapia duró lo suficiente para que sus vías respiratorias maduren como normal. El artículo incluye un vídeo en que los doctores discuten el procedimiento.

A medida que envejecemos, claves para recordar dónde están las llaves (The New York Times)
A medida que envejecemos, evitar el deterioro cognitivo que puede interferir con la calidad de vida es una opción mucho mejor que tratar de revertirlo. El Instituto de Medicina ha destacado varias acciones que todos pueden tomar para maximizar las probabilidades de permanecer cognitivamente bien hasta los años crepusculares. En primer lugar y ante todo, debe ser físicamente activo. En segundo lugar, debe prevenir o controlar los factores de riesgo cardiovascular, incluyendo la presión arterial alta, el tabaquismo, la obesidad, y la diabetes. También, debe beber alcohol moderadamente, dormir lo suficiente, y participar en actividades cognitivamente e intelectualmente estimulantes.

Más estadounidenses, que están envejeciendo, están utilizando bastones, andadores (healthfinder.gov)
Los bastones, andadores, y otros dispositivos de movilidad se utilizan por alrededor de un cuarto de los adultos mayores en los EEUU, un nuevo estudio revela. El uso de bastones y otros dispositivos de movilidad se disparó casi un 50 por ciento sobre un periodo reciente de ocho años, de acuerdo con las entrevistas de más de 7,600 beneficiarios de Medicare. Además, casi 10 por ciento de las personas mayores utilizan más de un dispositivo de movilidad. Los expertos atribuyen este aumento a varios factores, de una población que envejece hasta el reconocimiento de la necesidad de seguir moviendo en la vejez. En general, se encontró que las mujeres eran 20 a 30 por ciento más probables de utilizar un dispositivo de movilidad que los hombres. El uso de dispositivos también fue generalmente más alto entre los afroamericanos, hispanos, y aquellos que eran obesos o tenían un historial de problemas de problemas de dolor, de equilibrio, o de coordinación.

La esperanza “banco de piernas” para cambiar las vidas de los amputados (Science Daily)
Los investigadores de la Universidad de Strathclyde de Escocia y los miembros de la organización de empresa social basada en Holanda ProPortion están estableciendo un servicio en Colombia que ofrece próstesis de alta calidad a las personas con bajos ingresos que han perdido un miembro, a menudo a través de lesiones causadas por las minas terrestres. Un equipo del Departamento de Ingeniería Biomédica de Strathclyde ha desarrollado la tecnología innovadora, conocida como Majicast, para la fabricación de tomas de miembros inferiores de prótesis que se ajustan a la prótesis de forma segura a los miembros residuales de los pacientes. ProPortion ha ideado un potencial modelo de empresa que abarcaría la formación para las personas que están operando a nivel técnico de prótesis, aumentando la calidad de su producto y permitiendo que el servicio se convierte en autosuficiente. Si es exitoso, la empresa podría ser adaptada para su uso en otros países.

Investigación:
La mayoría de adultos mayores están dispuestos a ser examinados por teléfono para la demencia (Science Daily)
Casi dos tercios de adultos mayores estaban dispuestos a someterse a exámenes por teléfono para la demencia, de acuerdo con un nuevo estudio del Centro para la Investigación de Envejecimiento de la Universidad de Indiana. La voluntad de ser sometido por teléfono no fue diferente por sexo, edad, o raza. Los investigadores encontraron que los dos predictores más significantes de la voluntad de ser examinados por teléfono fueron la creencia en los beneficios del conocimiento precoz del deterioro cognitivo y tener una migo o relativo con enfermedad de Alzheimer. La detección de demencia está diseñado para detectar los problemas que requieren mayor evaluación diagnostica.

¿Y si no hay una epidemia de Autismo? (The Daily Beast)
El informe de marzo de 2014 de los Centros de Control y Prevención de Enfermedades muestra un aumento de 30 por ciento en los trastornos del espectro autista (TEA) en el lapso de unos años plante+ una preocupación generalizada sobre la causa del aumento. Un nuevo estudio sueco publicado por la BMJ sugiere que la causa puede tener menos que ver con el número actual de casos de TE y más con la naturaleza de como los determinamos. Los factores externos, desde el diagnóstico hasta la socioeconomía, pueden haber inflado los informes que sugieren que las tasas de autismo están subiendo rápidamente.

 

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Apoyo a la Familia: ¡Participe en el Diálogo!

</es>En el marzo pasado, el Centro de Investigación de Rehabilitación y Capacitación (RRTC por sus siglas en inglés) sobre el Apoyo a la Familia en la Universidad de Illinois en Chicago financiado por NIDILRR (H133B140046) y los Easter Seals dieron a la comunidad de discapacidad la oportunidad de ser parte de un diálogo en inglés y español sobre lo que los miembros de la comunidad piensan que los investigadores del apoyo a la familia deben investigar. El diálogo se llama Apoyo a la Familia: Díganos Lo Que Necesitamos Saber y, aunque la parte del diálogo en línea está cerrada, las personas que desean ser parte de la conversación todavía pueden participar por teléfono o por la pluma y el papel hasta el 31 de mayo 2015.

Los temas pueden incluir la asistencia sanitaria; los aspectos financieros, espirituales, o emocionales de ser un cuidador familiar; la transportación; las preocupaciones diarias sobre prestación de asistencia o atención; o la educación. Para participar, usted puede presentar su tema al llamar al 844/781-4158 y dejar un mensaje. O puede descargar el formulario, llenarlo y enviarlo a FSRTC c/o Dra. Sandy Magana, 1640 W. Roosevelt Road, M/C626, Chicago, IL 60608. También puede escanear su formulario y enviarlo por correo electrónico a mmoral29@uic.edu. También puede participar cuando le hace saber a su red social sobre el diálogo con el uso de los hashtags #FSNeedtoknow (inglés) y #AFDíganos y hacerse amigo de Easter Seals en Facebook (en inglés) para seguir las noticias y actualizaciones en el diálogo.

¿Su organización está llevando a cabo un evento o reunión, donde los cuidadores familiares estarán participando? Considere la posibilidad de una discusión sobre dónde es más necesaria la investigación de apoyo familiar. Imprima unas cuantas copias para recoger las ideas de su organización y ayude a dirigir el futuro de esta importante investigación.

Si desea más información, póngase en contacto con el RRTC sobre el Apoyo de la Familia cuando llame al teléfono gratuito 844/781-4158, visite el sitio web de Apoyo a la familia en fsrtc.ahslabs.uic.edu (en inglés), o envíe un correo electrónico a dialogue@easterseals.com.<\es>

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Family Support: Get Involved in the Dialogue!

Last March, the NIDILRR-funded Rehabilitation Research and Training Center (RRTC) on Family Support at the University of Illinois in Chicago (H133B140046) and the Easter Seals gave the Disability Community the opportunity to be a part of a dialogue in English and Spanish on what members of the community think family support researchers should investigate. The dialogue is called Family Support: Tell Us What We Need to Know and, although the online portion of the dialogue is closed, those who wish to be a part of the conversation can still participate by phone or by pen and paper until May 31st, 2015.

Topics can include healthcare; the financial, spiritual, or emotional aspects of being a family caregiver; transportation; day to day concerns about providing assistance or care; or education. To participate, you can submit your topic by calling 844/781-4158 and leaving a message. Or you can download the form, fill it out, and send it to FSRTC c/o Dr. Sandy Magana, 1640 W. Roosevelt Road, M/C626, Chicago, IL 60608. You can also scan your form and email it to mmoral29@uic.edu. You can also participate by letting your network know about the dialogue on social media by using the hashtags #FSNeedtoknow and #AFDíganos (Spanish) and friend Easter Seals on Facebook to follow news and updates on the dialogue.

Is your organization holding an event or meeting where family caregivers will be participating? Consider a discussion of where family support research is most needed. Print a few copies to collect your organization’s ideas and help steer the future of this important research.

If you would like more information, please contact the RRTC on Family Support by calling toll free 844/781-4158, visiting the Family Support website at fsrtc.ahslabs.uic.edu, or sending an email to dialogue@easterseals.com.

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Older Americans Month: Get Into the Act!

May plays host to a wide range of health-related observances, among them Older Americans Month! The Administration for Community Living is marking the 50th anniversary of the signing of the Older Americans Act with the theme Get Into the Act focusing on how older adults are taking charge of their health, getting engaged in their communities, and making a positive impact in the lives of others. This year’s celebrations highlight the importance of community engagement as a tool for enhancing well-being for older adults.

NIDILRR research in aging looks at both the effect of aging on people with disabilities and those aging into disability. Aging-related disabilities include hearing loss, increased risk of stroke and diabetes, fall-related injuries, and cognitive decline and dementia. Individuals with physical, developmental, and psychiatric disabilities are living longer and, therefore, are experiencing these aging-related disabilities on top of their existing disabilities. Here’s a look at some of the current research projects working in these areas, as well as resources you can use right now as part of your Older Americans Month celebrations!

These are just a few examples of what the NIDILRR community is working on with regard to aging and community engagement. For more, check out abstracts from our collection on aging and community participation from grantees, as well as research from other sources. These and more are available through our document delivery service.

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