#BecauseOfTheADA – Thoughts from Our Director

Twenty-four years ago this month, President George H.W. Bush signed the Americans with Disabilities Act (ADA) into law. The ADA remains a landmark piece of civil rights legislation and has influenced similar legislation around the world, including the United Nations Convention on the Rights of People with Disabilities. These and similar laws have increased access for people with disabilities to education, employment, facilities, housing, transportation, communication, and other resources, enabling them to live independently in the community of their choosing.

I have very strong, very personal memories of that day in 1990. I was there at the signing (somewhere there’s a picture of me). I tracked the progress of the bill as it made its way through Congress. I watched Justin Dart work with unions, industry, and private businesses to build support for the legislation.

Change happened: first physical, then attitudinal. Curb cuts and ramps gave us access to buildings. Changes in attitude, though slower, gave us access to opportunity. What I really saw was our seat finally pulling up to the table!

#BecauseOfTheADA we have a voice. #BecauseOfTheADA we have opportunity. #BecauseOfTheADA decisions are made with us, instead of for us.

I’m looking forward to the 25th anniversary. The ADA Legacy Tour promises to be a great kick off, rallying the country around issues of access and participation. I’ll see you then!

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Webinar: Accessible Routes 8/7

The ADA National Network and the Access Board offer a webinar Accessible Routes, August 7th, 2:30-4pm ET. The session will feature an advanced level discussion of the requirements for accessible routes in the ADA and ABA Accessibility Standards. Presenters will address in greater detail topics and issues concerning accessible routes, including connection to required clear floor spaces, door maneuvering clearances, and exterior routes. They also will answer questions submitted from attendees in advance and those posed during the webinar session. Participants are encouraged to review earlier webinars on accessible routes and accessible routes on sites in advance of the upcoming session.

Registration is free but required and you must register by August 6th.

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Preguntas y Respuestas: Suplementario

Recientemente publicamos un número de Preguntas y Respuestas con autismo como el tema. Nos gustaría añadir los siguientes recursos y alcance comunitario para nuestros lectores en los EEUU:

Por favor, deje un comentario aquí o en nuestra página de Facebook para hacernos saber de cualquier otro recurso en español que puede tener en cuenta.

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Answered Questions: Supplemental

We recently published an issue of Answered Questions with Autism as its theme. We would like to add the following resources and community outreach for our readers in the US:

Please leave a comment here or on our Facebook page to let us know of any other Spanish language resources you may be aware of.

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Resumen Semanal de las Noticias sobre la Discapacidad: Lunes, 21 de Julio – Viernes, 25 de Julio

Interés Humano:
“Extraordinario” niño pequeño termina triatlón con su hermano discapacitado (NBC Today)
Un niño de 8 años de edad, no quería que su hermano de 6 años de edad que usa una silla de ruedas pierda la oportunidad de ser parte de un triatlón, así que tiró y empujó a su hermano pequeño en todo el camino mientras que nadaba, anduava en bicicleta, y corria. El nadó 200 metros con una cuerda alrededor de su pecho y unido a una balsa inflable que mantenía su hermano. Entonces él anduvo en bicicleta por tres millas mientras que tiraba el hermano en un remolque de bicicleta. Finalmente, corrió una milla mientras que empujaba a su hermano en un carrito especial.

Política:
Tratado de Discapacidad de las Naciones Unidas despeja el subcomité del Senado (Disability Scoop)
La Comité de Relaciones Exteriores del Senado ha aprobado la Convención de los Derechos de Personas con Discapacidades de las Naciones Unidas por un voto de 12 a 6. El tratado, que establece una norma internacional para los derechos de discapacidad similar a lo que ya está en marcha en el país a través de la Ley de Americanos con Discapacidad, se dirige ahora al pleno del Senado, donde sería necesario tener el voto de dos tercios de la mayoría para ser ratificado. Los EEUU firmó la Convención de las Naciones Unidas en 2009, pero se necesita la aprobación del Senado con el fin de oficializar la participación. En la actualidad, 146 países de todo el mundo y la Unión Europea han ratificado el tratado.

Congreso piensa sobre las cuentas de ahorro libres de impuestos para las personas con discapacidad (Disability Scoop)
Legislación conocida como la Ley del Logro de una Mejor Experiencia de la Vida, o ABLE, permitiría que las personas con discapacidades puedan crear cuentas especiales donde podrían ahorrar hasta 100,000 dólares sin poner en riesgo la elegibilidad para los beneficios del Seguro Social o perder la cobertura de Medicare. Una reciente audiencia del Senado de los EEUU marcó el primer paso en el Congreso del proyecto de ley, que ha estado bajo consideración desde 2006.

Grupos de abogacia de sordos a Verizon: No mate neutralidad de la Internet en nuestro nombre (Ars Technica)
Grupos de abogacia para personas sordas han respondido al cabildeo de Verizon contra la neutralidad de la red. Verizon afirma que “carriles rápidos” en los servicios web, incluyendo aquellos diseñados para los usuarios ciegos y sordos y aquellos con discapacidades, podrían ser priorizados a cambio de una remuneración. Los grupos de abogacia han presentado observaciones ante de la FCC diciendo que no estáb de acuerdo con la posición de Verizon, diciendo que hacer accesible los servicios y aplicaciones basados en la Internet es posible en una red abierta.

Investigación:
Ejercicio extra ayuda a los fumadores con depresión a dejar el hábito más rápido (Science Daily)
Según un estudio publicado recientemente en la revista Investigación de Nicotina & Tobacco, las personas diagnosticadas con depresión necesitan salir por un cigarillo por doble de frecuencia que los fumadores sin un trastorno del estado de ánimo. Y mientras que casi uno de cada cinco adultos norteamericanos son fumadores regulares, alrededor del 40 por ciento de personas deprimidas están en necesidad de un cigarrillo regular. Sin embargo, según el estudio de 18 meses, dejar de fumar se encontró que era más fácil para quienes se dedican a un poco más de ejercicio, ya que los síntomas de abstinencia se redujeron en las postrimerías de caminatas regulares.

Tecnología inspirada por las moscas podría encontrar su uso en mejores audifonos (gizmag)
La mosca ornmia ochracea tiene un mecanismo de audiencia única que le permite determinar con precisión la localización de un grillo sobre la base de sus chirridos. (La mosca utiliza el grillo como anfitrión para sus larvas.) Científicos de la Universidad de Texas en Austin han duplicado este mecanismo, que será usado para informar el diseño de audífonos de última generación. Los científicos esperan que la tecnología puede ser utilizada en compactos audífonos de bajo poder que son más capaces de discernir las conversaciones de ruido de fondo.

Tecnología:
Controlando los agarres robóticos: Nuevo dispositivo montado en la muñeca aumenta la mano humana con dos dedos robóticos (Science Daily)
Los investigadores en el Instituto de Tecnología de Massachusetts han desarrollado un robot que mejora el movimiento de agarre de la mano humana. Colocado en la muñeca, el dispositivo trabaja como dos extra dedos adyacentes al meñique y el pulgar. Un algoritmo de control novedoso permite que se mueva en sincronía con los dedos del usuario para agarrar objetos de diferentes formas y tamaños. Los investigadores esperan que el robot de dos dedos pued ayudar a personas con destreza limitada en el desempeño de tareas rutinas como abrir tarros y levantar objetos pesdados.

Talk respira nueva vida en el mercado de dispositivos de comunicaciên alternativa (gizmag)
Talk, un dispositivo de comunicación aumentativa y alternativa (AAC por sus siglas en inglés) para personas con discapacidades del habla, permite a los usuarios escribir palabras utilizando diferentes longitudes de aliento. Desarrollado por un estudiante de 16 años de edad y finalista en la Feria de Ciencias de Google, Talk utiliza un sensor de presión para controlar las variaciones en la respiración y generar dos señales distinguibles. Estas señales son procesadas como un idioma binario y sintetizan en voz por lo tanto. Un algoritmo se utiliza para distinguir entre exhala cortas y largas y un motor de cálculo se utiliza para sintetizar las palabras introducidas en voz.

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Disability News Weekly Roundup – Monday, July 21 – Friday, July 25

Human Interest:
‘Extraordinary’ little boy finishes triathlon with his disabled brother (NBC Today)
An 8-year-old boy did not want his 6-year-old sibling who uses a wheelchair to miss out on a triathlon, so he pulled and pushed his little brother the whole way as he swam, biked, and ran. He swam 200 meters with a tether around his chest and attached to an inflatable raft that held his brother. Then he biked for three miles while pulling the brother in a bike trailer. Finally, he ran one mile while pushing his sibling in a special buggy.

Policy:
UN disability treaty clears Senate subcommittee (Disability Scoop)
The Senate Foreign Relations Committee has approved the United Nations Convention on the Rights of Persons with Disabilities by a 12 to 6 vote. The treaty, which establishes an international standard for disability rights similar to what is already in place domestically through the Americans with Disabilities Act, is now headed to the full Senate, where it would need a two-thirds majority vote to be ratified. The US signed the UN Convention in 2009, but Senate approval is needed in order to make participation official. At present, 146 countries around the world and the European Union have ratified the treaty.

Congress weighing tax-free disability savings accounts (Disability Scoop)
Legislation known as the Achieving a Better Life Experience, or ABLE, Act would allow people with disabilities to create special accounts where they could save up to 100,000 dollars without risking eligibility for Social Security benefits or losing Medicare coverage. A recent US Senate hearing marked the first step in Congress for the bill, which has been under consideration since 2006.

Deaf advocacy groups to Verizon: Don’t kill net neutrality on our behalf (Ars Technica)
Advocacy groups for Deaf people have responded to Verizon’s lobbying against network neutrality. Verizon argues that “fast lanes” Web services, including those designed for blind and Deaf users and those with disabilities, could be prioritized in exchange for payment. The advocacy groups have filed comments with the FCC saying they do not agree with Verizon’s position, saying that making Internet-based services and applications accessible is possible on an open network.

Research:
Extra exercise helps depressed smokers kick the habit faster (Science Daily)
According to a study recently published in the journal Nicotine & Tobacco Research, smokers diagnosed with depression need to step out for a cigarette twice as often as those without a mood disorder. And while nearly one in five North American adults are regular smokers, about 40 percent of depressed people are in need of a cigarette regularly. Yet, according to the 18-month study, quitting smoking was found to be easier for those engaging in a bit more exercise, as withdrawal symptoms were reduced in the aftermath of regular walks.

Fly-inspired tech could find use in better hearing aids (gizmag)
The ormia ochracea fly has a unique hearing mechanism that allows it to precisely determine the location of a cricket based on its chirps. (The fly uses the cricket as a host for its larvae.) Scientists at the University of Texas Austin have now duplicated this mechanism, which will be used to inform the design of next-generation hearing aids. The scientists hope that the technology can be used in compact low-power hearing aids that are better able to discern conversations from background noise.

Technology:
Getting a grip on robotic grasp: New wrist-mounted device augments the human hand with two robotic fingers (Science Daily)
Researchers at the Massachusetts Institute of Technology have developed a robot that enhances the grasping motion of the human hand. Worn around the wrist, the device works like two extra fingers adjacent to the pinky and thumb. A novel control algorithm enables it to move in sync with the wearer’s fingers to grasp objects of various shapes and sizes. The researchers hope that the two-fingered robot may assist people with limited dexterity in performing routine tasks such as opening jars and lifting heavy objects.

Talk breathes new life into the alternative communication device market (gizmag)
Talk, an augmentative and alternative communication (AAC) device for people with speech disabilities, allows users to spell out words using different lengths of breath. Developed by a 16-year-old student and a finalist in the Google Science Fair, Talk uses a pressure sensor to monitor variations in breath and generate two distinguishable signals. These signals are further processed as a binary language and synthesized into speech accordingly. An algorithm is used to distinguish between short and long exhales and a computing engine is used to synthesize the inputted words into speech.

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Answered Questions: Monthly News for the Disability Community

Answered Questions is a monthly resource for the Spanish language Disability Community that fills an information need. Each month, we look through the searches on our blog and through the information requests made by our patrons who speak Spanish and pick a topic that fills the largest need. Each article mentioned below is associated with this month’s information need. We search the various Spanish language News sources and feeds throughout the month to bring you these articles. With the exception of the NIDRR Projects and Further Investigation, all the linked articles and resources are in Spanish. This month we focus on Autism and Autism Spectrum Disorders, the most popular topic among our Spanish-speaking patrons.

NIDRR Projects:
Examination of the Use of a Spanish Version of the Online and Applied System for Intervention Skills (OASIS) Training Program with Parents of Children with an Autism Spectrum Disorder – Project Number: H133G110131 (In English)
Although this project has completed its research activities, the project looked to address the deficit in access and training for parents who speak Spanish of children with autism spectrum disorders. The researchers adapted the Online and Applied System for Intervention Skills (OASIS) Training Program to teach these parents how to use empirically-based interventions with their child. The effectiveness of the program was evaluated based on various markers and the families completed surveys to elicit feedback regarding the program.

Research:
Group for Autism and Learning Disabilities (Autismo España)
This group is based in the Instituto de Robótica – Universidad de Valencia. This group is studying 5 areas: (1) use of virtual reality for employment of people with autism, (2) use of virtual reality to research social comprehension of emotions by people with disability, (3) use of agendas and email for people with autism, (4) use of virtual reality for the education of people with Down syndrome, and (5) use of multimedia apps for the support of people with Down syndrome during work integration.

Technology:
ITASD 2014: Digital Solutions for People with Autism (AutismoDiario.org)
The 2nd International Congress ITASD will take place this year in Paris on October 3rd and 4th. The Congress will be an open forum of exchange of ideas and opinions in which all interested parties (people with autism, families, professionals, businesses, researchers and developers) can discover and present the advances and in the world of technology as it applies to autism.

Rehabilitation:
The benefits of sports for children with autism (Fundación Convalores)
This article describes the benefits of sports for children with autism and describes what parents need to be aware of (how tired their child is, things that their child might not think to ask for such as water). The article also describes the ideal modalities to get children with autism started in sports.

Education:
Inclusive Education in Paraguay (Fundación Teletón)
Sofía Barranco, Director of Inclusive Education of Fundación Teletón, speaks about the state of inclusion in schools in Paraguay. Ms. Barranco states that, for inclusion to be a reality, there is much to do in all sectors. She also states that the complete inclusion of children with disabilities needs two things first: a plan that includes the whole scholastic community (school personnel, technical team, parents, and students) and the design of curricular accommodations. To learn more, visit the Fundación’s website.

Employment:
Choosing the Right Job for People with Autism or Asperger Syndrome (EspectroAutista.Info)
This article, written by Temple Grandin in 1999 and translated into Spanish by Jimena Drake, discusses choosing a job that best fits the talents of people with autism or Asperger Syndrome. Ms. Grandin also discusses her method of choosing the right job and she provides the lists she used to help her figure out her strengths.

Human Interest:
Lorenzo’s Dipper (AutismoDiario.org)
Lorenzo’s Dipper is a children’s book written by Isabelle Carrier about a boy named Lorenzo who always has to pull a red dipper behind him. At times, the red box gives Lorenzo challenges that, with the help of some friends, he learns to slowly overcome. Through his challenges, Lorenzo has to find the positives in his life where he previously only saw the negative. Lorenzo’s Dipper artfully teaches children not to stereotype people with disabilities. A video is included.

Resources:

Further Research:

  • REHABDATA:

o    On Autism and Spanish Language (In English)

o    On Latinos and Autism (In English)

  • PubMed:

o    On Latinos and Autism (In English)

o    Spanish Language and Autism (In English)

  • CIRRIE:

o    On Autism and Spanish Language (In English)

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Preguntas y Respuestas: Noticias Mensuales para la Comunidad de Discapacidad

Preguntas y Respuestas es un recurso mensual para la Comunidad de Discapacidad de habla española que llena una necesidad de información. Cada mes, revisamos las búsquedas que aparecen en nuestro blog y a través de las solicitudes de información hechas por nuestros clientes que hablan español y elegimos un tema que llena la necesidad mayor. Cada artículo mencionado a continuación está asociado con la necesidad de información de este mes. Buscamos varios recursos y fuentes de noticias en español todo el mes para traerle estos artículos. Con la excepción de los Proyectos de NIDRR y Más Investigaciones, todos los enlaces de los artículos y recursos se encuentran en español. Este mes nos concentramos en el Autismo y Trastornos del Espectro Autista, el tema más popular entre nuestros clientes de habla hispana.

Proyectos de NIDRR:
El examen del uso de una versión en español del Programa de Capacitación del Sistema en Línea y Aplicado para las Habilidades de Intervención (OASIS) con Padres de Niños con un Trastorno del Espectro Autista – Número del Proyecto: H133G110131 (En inglés)
Aunque este proyecto ha finalizado sus actividades de investigación, el proyecto hizo frente al déficit en el acceso y la capacitación para los padres que hablan español de niños con trastornos del espectro autista. Los investigadores adaptaron el Programa de Capacitación del Sistema en Línea y Aplicado para las Habilidades de Intervención (OASIS por sus siglas en inglés) para enseñar a estos padres como utilizar intervenciones con base empírica con sus hijos. La eficacia del programa fue evaluado en base a varios marcadores y las familias completaron encuestas para obtener comentarios sobre el programa.

Investigación:
Grupo para el Autismo y las Discapacidades de Aprendizaje (Autismo España)
Este grupo tiene su sede en el Instituto de Robótica – Universidad de Valencia. Este grupo está estudiando 5 áreas: (1) uso de la realidad virtual para el empleo de personas con autismo, (2) uso de la realidad virtual para investigar la comprensión social de emociones por las personas con discapacidad, (3) uso de agendas y de correo electrónico para personas con autismo, (4) uso de realidad virtual para la educación de personas con síndrome de Down, y (5) uso de aplicaciones multimedia para el apoyo de personas con síndrome de Down durante la integración laboral.

Tecnología:
ITASD 2014: Soluciones Digitales para Personas con Autismo (AutismoDiario.org)
El 2º Congreso Internacional ITASD tendrá lugar este año en París el 3 y 4 de octubre. El Congreso será un foro abierto para el intercambio de ideas y opiniones en el que todas las personas interesadas (las personas con autismo, las familias, los profesionales, las empresas, los investigadores y desarrolladores) pueden descubrir y presentar los avances y en el mundo de la tecnología según aplica el autismo.

Rehabilitación:
Los beneficios de deportes para los niños con autismo (Fundación Convalores)
Este artículo describe los beneficios del deporte para los niños con autismo y describe que cosas los padres deben de ser conscientes (lo cansado que su hijo esta, cosas que su niño puede no piensa en pedir – como el agua). El artículo también describe las modalidades ideales para que los niños con autismo se inicien en el deporte.

Educación:
Educación inclusiva en Paraguay (Fundación Teletón)
Sofía Barranco, Director de Educación de la Fundación Teletón, habla sobre el estado de la inclusión en las escuelas en Paraguay. La Sra. Barranco establece que, para que la inclusión sea una realidad, hay mucho que hacer en todos los sectores. Ella también dice que la inclusión completa de niños con discapacidades primero necesita dos cosas: un plan que incluye la  comunidad escolástica entera (personal de la escuela, equipo técnico, padres, y estudiantes) y el diseño de adaptaciones curriculares. Para obtener más información, visite el sitio web de la Fundación.

Empleo:
Elegir el trabajo adecuado para personas con autismo o síndrome de Asperger (EspectroAutista.Info)
Este artículo, escrito por Temple Grandin en 1999 y traducido al español por Jimena Drake, discute la elección de un puesto de trabajo que se ajusta mejor a los talentos de personas con autismo o síndrome de Asperger. La Sra. Grandin también discute su método de selección del trabajo adecuado y proporciona las listas que ella utilizó para ayudarla a averiguar sus propios puntos fuertes.

Interés Humano:
El Cazo de Lorenzo (AutismoDiario.org)
El Cazo de Lorenzo es un libro para niños escrito por Isabelle Carrier sobre un niño llamado Lorenzo, que siempre tiene que tirar un cazo rojo detrás de él. A veces, el cazo rojo le causa problemas a Lorenzo quien, con la ayuda de algunos amigos, aprende como superarlo poco a poco. A través de sus desafíos, Lorenzo tiene que encontrar lo positivo en su vida donde antes veía lo negativo. El Cazo de Lorenzo enseña ingeniosamente a los niños a no estereotipar a las personas con discapacidades. Un vídeo está incluido.

Recursos:

Más Investigaciones:

  • REHABDATA:

o    Sobre el Autismo y el Idioma Español (En inglés)

o    Sobre los Latinos y el Autismo (En inglés)

  • PubMed:

o    Sobre los Latinos y el Autismo (En inglés)

o    Sobre el Autismo y el Idioma Español (En inglés)

  • CIRRIE:

o    Sobre el Autismo y el Idioma Español (En inglés)

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The Workforce Innovation and Opportunity Act of 2014

Please see the following announcement from NIDRR:

The Workforce Innovation and Opportunity Act of 2014
The President signed the Workforce Innovation and Opportunity Act (WIOA), which replaces the outdated Workforce Investment Act of 1998. This new law represents a renewed commitment to workforce development with an eye to the future through innovation and support for individual and national economic growth. It is aimed at increasing opportunities, particularly for those facing barriers to employment, and invests in the important connection between education and career preparation. It looks to the prosperity of workers and employers and focuses on the economic growth of communities, regions, and states to enhance our global competitiveness as a country. While some research services and resources for those with disabilities will be transferred from the U.S. Department of Education (ED) to the U.S. Department of Health and Human Services (HHS), we expect a seamless transition with minimal disruption, and we express our continued strong commitment to grantees and all key stakeholders.

The new law states that the amendments that it makes to the Rehabilitation Act, as well as the transfer of certain programs from ED to HHS, took effect when President Obama signed the bill. However, WIOA also gives the Secretaries of ED and HHS authority to ensure an orderly transition as they implement these changes so they are carried out in a manner that minimizes disruption. ED and HHS, after working with the Office of Management and Budget, have determined that ED will continue to administer the affected programs until the orderly transfer can be completed as soon as reasonably possible. We will continue to engage and inform grantees and key stakeholders as specific plans for the transfer of these programs are developed and implemented. We appreciate your continued support as we realign and strengthen our programs for people with disabilities.

For more information, please visit http://www2.ed.gov/about/offices/list/osers/nidrr/wioa-reauthorization.html

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From NWRSCIS Adjusting to a Spinal Cord Injury – Sadness, Grief, and Moving Forward

The latest e-alert from the NIDRR-funded Northwest Regional Spinal Cord Injury System Center (NWRSCIS) just popped into our inboxes and it’s too good not to share. It highlights several resources developed by the NWRSCIS targeted toward individuals and families experiencing spinal cord injury for the first time. We are reposting it here with links to those resources. If you find this helpful, we highly recommend visiting the NWRSCIS on Facebook, following them on Twitter, and signing up for their excellent email alerts.

Dear Northwest Regional Spinal Cord Injury System Subscribers:

A spinal cord injury can turn a person’s world upside down. In addition to the serious physical changes, SCI can be an emotional shock. In their individual ways, everyone tries to process these changes and how they will affect their lives moving forward. Sadness, grief and even depression are frequent and normal responses to this kind of trauma, both for the injured person and for family members and loved ones.

Recognizing that everyone reacts differently, most people do find support and resources very helpful. Many newly injured individuals as well as those with longtime SCI have told us the following information and videos have helped them in their adjustment.

Moving Forward After Spinal Cord Injury
This short documentary profiles a young man who sustained a spinal cord injury during his freshman year in college. As he narrates his journey with tetraplegia (quadriplegia) —the traumatic early days, the challenges and achievements—we see the images of his present day life: driving to his full-time engineering job, living in his condo, partying with friends before a football game, and continuing his passion for skiing.

Depression after Spinal Cord Injury: Myths and Facts
While some degree of sadness and grief is normal after SCI, most people with SCI go on to live fulfilling lives that include love, family, work and fun. Persistent depression occurs in about one out of five people with SCI and needs to be recognized and treated because it can keep people from getting as much function, independence and satisfaction out of life as possible. This article describes myths and facts about depression and the many approaches available for decreasing or eliminating depression so you can get on with life.

It Happened to Both of Us: Conversations with Couples
The impact of SCI is felt by the whole family, especially a spouse or partner. In this video, a panel of couples who were together before an injury and are still together talk about their experiences and what they do to stay connected and maintain a healthy relationship.

Staying Healthy After a Spinal Cord Injury: Depression and SCI
This pamphlet provides guidelines for recognizing if you or someone you know might be depressed and what to do about it.

Life after SCI: A Mother’s Story
A mother talks frankly about her reactions and feelings after her teenage son sustained a spinal cord injury in an accident.

Conversations about…living with a spinal cord injury
This video features three men and one woman, all with longstanding spinal cord injuries, who talk about their personal experiences living, surviving and thriving with their injuries. They share their initial reactions, adjustment, steps toward independence and thoughts about their injuries now.

See all of our videos at http://sci.washington.edu/videos.

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